Does anyone have any knowledge or experience of

[Chottie]

Krabbe Disease?

Sorry, no experience of this, didn't want to read and run. Hopefully someone will

Hi chottie, try reposting with Krabbe disease in the subject line - it will catch someone's attention if they do know something about it.

Have you tried your GP?

If it's rare, they will probably have to google it, but they'll still digest the medical jargon faster than you will, and can explain things in English.