Neurologist and Genetisist

[jbadgirl]

Ds had his neurologist app on monday and she thinks that he has CP due to a urine infection I had at 28 weeks preggers. We then had the genetisist app on tues and he said that a urine infection would not have caused ds' problems and that he doesnt think it is CP. Ds has a small head so he is thinking he is showing signs of microcephaly. I am really confused and not sure at all who could be right. They will be repeating the mri scan soon to see if there are more answers as ds had one when he was about 3 months old.
Ahh what a nightmare! They cant even agree!

Ds is 20 months old now and has very delayed development and poor vision.

Poor you, jbadgirl. My initial impression was that the neurologist was talking nonsense, but actually there are papers suggesting she could well be right, like this . I think it is just very hard to come up with hard and fast diagnoses, especially in really young children. My friend who is a paediatric geneticist/neurologist says that 80% of the children in his clinic will never get a firm diagnosis in all probablility (not because he's crap, I hasten to add...)

I know, it does all seem to link in to the infection i had as that is when ds stopped growing properly inside me.
We have been told that we may never know what caused it and may never get a diagnosis.
I keep saying to people that it wont make much of a difference anyway as it wont change anything!

Its just funny how they both said completely opposite things!