Williams syndrome

[NobbyD]

My ds2 is 3 months and just being tested for Williams syndrome.

I'm about 98% sure it will come back positive so I'm looking for other mums out there who have experienced this to talk to

Thanks in advance

Am bumping this as we now have confirmation my son does have Williams.

Is there anyone out there in mumsnet world who has any experience of this?

Hi Nobby, no experience of Williams Syndrome but I have two children with a genetic craniofacial syndrome - Treacher Collins. There will be people on here who will have experience with some of the issues that you may face as he grows up. So if you have any queries about tube feeding, excessive saliva or kidney issues there will be someone able to help, or just to listen and support.

Welcome and congratulations on the birth of your DS.