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Here are some suggested organisations that offer expert advice on special needs.

Original poster

Metabolic Storage Diseases- Experiences or knowledge please

2 replies

Lucyb88 · 16/06/2013 11:34

Anyone had or is having an experience with this, Hunter syndrome in particular - please share xx

OP posts:
Minimoan · 16/06/2013 14:59

There is a specific form (worldwide): www.mpsforum.com/
The MPS Society UK can give more information and there is also an active facebook group.

Hope this helps.

Original poster
Lucyb88 · 17/06/2013 14:55

thank you

OP posts:
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