Any other mums on hear witih a genetic disorder son ?

[xxyymum]

is there a genetic disorder thread , my ds is 4 and has xxyy syndrome its very rare syndrome and none of the drs no about it .

Hi xxyymum not the same, but my DD has a really rare chromosome disorder too.

Have you been recommended to contact Unique yet? If not, I'd highly recommend them, they have info on lots of rare chromo disorders and can put you in touch with others with DC with the same or similar condition.

There's also a thread on this board too that you might be interested in here

Welcome to MN SN!