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SN children

Here are some suggested organisations that offer expert advice on special needs.

CChs

1 reply

piglettsmummy · 28/11/2012 21:31

Anyone with a dc who has or is suspected Congenital central hypo ventilation syndrome ? have loads of questions and I have had to leave two support groups already because no
One believes me/ I'm rude etc please anyone who can help I will be truly grateful

OP posts:
Ineedalife · 28/11/2012 22:09

I am sorry piglet I dont know anything about CCHS.

I hope someone comes along who can help you and I am sorry that you are not getting enough support.Sad

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