Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Now I am one. The next thread for Beatrice.

408 replies

cupofteaplease · 22/10/2012 18:12

So, Beatrice is now 13 months old and developing slowly but surely. She brings joy to everyone she meets and makes my heart swell with pride.

At the moment, she is very poorly in hospital. She appears to have overcome pneumonia, but the remaining secretions are causing her huge problems. Her airway blocks at random with a mucous plug and she has had to be revived with a bag and mask 3 times in the past 24 hours. Naturally, I am in a permanent state of anxiety at the moment. I just want Beatrice home again. We have so many more memories to make.

Please spare a thought for Beatrice's sisters if you can- they too are poorly with a sickness bug and all they really want right now is cuddles with Mummy.

Life is tough right now, but nobody said it would be easy...

OP posts:
Northernlurkerisbehindyouboo · 23/10/2012 10:20

Praying for Bea and for you. Our hearts are with you and with Bea.

Psalm 121
The Lord watches over you?
the Lord is your shade at your right hand;
the sun will not harm you by day,
nor the moon by night.

The Lord will keep you from all harm?
he will watch over your life;
the Lord will watch over your coming and going
both now and forevermore.

cupofteaplease · 23/10/2012 10:25

NorthernLurker Thanks

Play worker just said I look the worst she's ever seen me Blush I think that's a fair assessment of how I am feeling right now.

OP posts:
mymatemax · 23/10/2012 10:31

and i think its fair that you feel as you do right now, you will continue to find the strength to continue to be there with Bea every step.
Keeping you all in our thoughts & prayers. So hope Bea shows signs of improvement soon.
Maybe the playworker needs some tact lessons Wink x

CaroleService · 23/10/2012 10:57

(((((())))))

FancyPuffin · 23/10/2012 11:00

Hugs and love to you cup

Positive vibes for Bea

pannetone · 23/10/2012 11:01

Praying for Beatrice and strength for you Cup. You must be so exhausted. But you are THERE Cup - and that in itself counts for so much, even if you no longer have the strength to hide how you are really feeling. Do not feel Blush about this - no one who isn't 'walking in your shoes' can know how difficult your journey is.

I am off to a weekly prayer group - it's a group called Mothers' Prayers (that has groups all over the world) and I will be once again praying for you and Beatrice. x

KateUnghoulyBush · 23/10/2012 11:02

Northernlurker that's beautiful. I am repeating it for Bea, Cup and all the Teaset.

With love xx

JustFabulous · 23/10/2012 12:27

Oh cup Sad. I am so sorry it is another tough day. I hope it is a comfort, if only tiny, that so many people are thinking of you and your family and praying for an improvement. Words seem so trite and I always feel like I am saying the wrong thing Blush.

ExitPursuedByAaaaaarGhoul · 23/10/2012 12:28

Signing in on the new thread and hoping that Bea is improving

Cup I genuinely do not know how you cope. Have another Well Done from me. I think you are amazing and your girls must be very proud of you.

Lovethesea · 23/10/2012 12:43

Praying and sending love to you all xxx

foofooyeah · 23/10/2012 12:59

Prayers here, prayers for healing and hope.

Pannetone: how lovely to a Mother's Prayer group praying for Bea - its just so right.

Cup, I dont have the words that some people have but am thinking of you.

Thumbwitch · 23/10/2012 13:02

Still here, still hoping, praying, candle-lighting, crossing everything that Bea comes through this as she has every other trauma so far - and I hope your other DDs are recovering from their bug too.

Wish I could contribute but I can't do Paypal (long boring story) - so will just send you heaps of strength vibes. xx

HairyPotter · 23/10/2012 13:29

Sending love and positive thoughts for little Bea xx

ThoughtBen10WasBadPokemonOMG · 23/10/2012 13:30

Sending my love and positive thoughts x

whatthewhatthebleep · 23/10/2012 13:33

I hope your Paypal is showing you enough that will really be able to help support your packing and moving issues...

Keep the deposits going people!! Smile...it's the one way we can be of practical support to all the tea set for now.....

cupofteaplease · 23/10/2012 13:52

Thank you for the best wishes and for staying with us. She's still unstable but fast asleep in 10 litres. The nurses keep discussing her in hushed tones, I don't think that's good. Dd1 and dh are here as I have to take dd1 down to ENT soon for her appointment. I don't want to leave Beatrice, but need to do this for dd1 too.

OP posts:
Northernlurkerisbehindyouboo · 23/10/2012 14:06

Cup -the nurses know Bea is poorly. They don't know her like you do. They know about babies like Bea, they don't know Bea. Don't read too much in to their demeanour. They're trying to stay professional and it's not good to discuss patients loudly.

With ENT - tell the HDU nurses which clinic you're going to and when you get to the clinic tell them your daughter is in HDU and if HDU call you need to know that instantly. They WILL go above and beyond for you. I would if you were here in the hospital I work in.

BaldricksTurnip · 23/10/2012 14:15

Cup, my thoughts and very best wishes to you and your beautiful family, and a very special hug and kiss for the gorgeous Bea. Stay strong xxx

MimsyBorogroves · 23/10/2012 14:23

Thinking of you all and sending strength xxx

eightytwenty · 23/10/2012 15:07

This reply has been deleted

Message withdrawn at poster's request.

cupofteaplease · 23/10/2012 16:04

No change.

OP posts:
pannetone · 23/10/2012 16:09

Of course we're staying with you Cup - just a shame we can only be with you 'virtually'. I feel for you being torn between Beatrice and DD1 this afternoon - I pray that all will be well for all of you. x

countingdown · 23/10/2012 16:11

Thoughts and best wishes are with you xx

annalovesmrbates · 23/10/2012 16:11

Still here and thinking of you all. X

JustFabulous · 23/10/2012 16:22

Thinking of your DD1 too.