special educadional needs for spina bifida

[sgaia]

Hello my name is Silvia i am spanish, I hope you will forgive me for my english.
I am a mother of two children Raul and Laura. Laura is Spina bifida.I would like to help me with muy doubts. The degree of Laura is sacred, she walks with the "aid of brace". She drobe. She is a carrier of colostomy. she has seven years and changed herself. We want to move to Bristol or the surrounding and I want to know if my daughter will have some help in their school and as I have to order.

Thanks for everything.

sorry do not want to bother searching for information on other sites, I thought you were parents who could be in the same situation as me.

thanks you

Hi Sgaia
It is more about the level of support that your daughter will need rather than the specific diagnosis that will decide if she will qualify for additional support.

Discuss your daughters specific needs with the school, if you feel she will need additional support to be able to be included and learn in the same way as non disabled children then it may be wise to apply to the local education office for a statement of educational needs.
Without knowing your childs level of ability it is difficult to advise.

Useful helpline.

Bristol expert from Cerebra

I would start by writing down everything extra or different which the current school does for your daughter. Including simple measures like toileting facilities, space for frame, etc. Get written evidence of this. Getting clear written reports of her current academic levels.

Making sure you have full copies of every single assessment and report ever done (especially psychology and education reports, important medical letters, IQ tests, anything neuropsychological or about complications like hydrocephalus, shunts etc). Don't worry if it's all in your language, priority is to collect it now, you can get it translated later if it's needed.

Example of local NHS services brochure. Final page says they can forward a copy in Spanish, might be worth a try asking, even if you're out if area.

Special educational needs quick summary

Disability living allowance quick summary. If you decide to apply, talk to the cerebra lady I linked to (above) about how to fill in the form.

And on arrival, register with a local GP (family doctor) and get them to refer your daughter here

Bienvenidos!!! Yo se nada de spina bifada, pero estoy un SENCO en una escuela primaria. Yo pudeo ayuadar con las cos con la escuela. ?Ustedes estan viviendo en Espana or Ingalaterra en este momento? Cuantos anos tiene Laura? Que tipo de assistencia va a necessitar durante el dia? Tambien, la escuela peude contactar servicios como Occupational Therapy - ellos peuden advisar de tipos de sillas, mesas, lapiz, plumas etc.

Probablement Laura va a necesitar un "Statement of Educational Need". este documente es un documente legal. Pero es dificile a obtener and vas necessitar dar muchas informacion de Laura.

Disculpe por mi espanol - vive en Mexico por tres anos, pero sale hace 16 anos y entonces mi espanol no es tan bueno todavia.

Tthank you very much, now I'm more informed, my daughter Laura have seven yeras and she need only physica help, non cognitive difficulties. I'm reading all your information, I think I have clear next steps.
Still do not live in England, we moved the following year but II want to keep things clear.

I will read all our information and I will continue to write.

Saludos, Silvia

Someone else hs suggested the "Shine" charity helpline. THey may have an adviser or group close to where you will be living, who will be able to give you lots of local advice and help when you get here.

I already had contact with charity shine but have not been very specific I'll try again, I think the biggest problem is that I do not live there yet but understand I can not go without knowing the conditions, so ask.