Hi i am new to this site and i must say i am pleased to feel like i can get it out with folks who can relate.its been a long hard rode between me and my lil guy who will be 4 next month,and my 11 year old daughter who i must say has been a patient,remarkable sister,daughter and trooper.my lil guy had downs,born premature,lungs wasnt developed but he is now off of 02(thank goodnees),just recently off a Gtube and only requiring NG feds over nite...we are still not walking yet and that is one of my biggest hopes,for he is geting heavy!!!! i just wanted to say hey and hope to chat with u soon.high fives and kisses to your little joys!