Hi,
My name is Allison, and I am mom to 2 kids who are pretty darn unique. DS is a couple of days from his 14th birthday and DD is 6. DS has some milder medical issues, fine/gross motor impairment and mild autistic traits, DD is the one who keeps me on my toes. She is very medically complex, with a laundry list of diagnoses but still technically "undiagnosed" because the docs believe her issues are all related but have no idea how. At this point, we have stopped looking for "the" answer and concentrate more on getting from one day to the next. In all likelihood, even if the docs can name her condition, it'll be rare enough that there isn't a treatment or prognosis, so we are just chasing our tails anyhow.
We live in Canada (I hope this is OK with the group - I find that European families can relate FAR more to the health realities in Canada than American ones can - and the majority of message boards on these topics seem to be primarily US).
I look forward to getting to know you all, and maybe sharing a bit of what we have learned on our journey through the years.