Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

See all MNHQ comments on this thread

Please come talk to MNHQ about Special Needs topics: better with fewer of them or not?

309 replies

HelenMumsnet · 05/05/2012 11:54

Hello.

We're looking into streamlining/reorganising our Topics list to make it easier for people to find the best topic for their thread, and to make it easier for everyone to find their way around Talk.

And, following on from some of the points raised on this Site stuff thread, we wanted to ask you folks about the range of SN Topics in Talk.

Currently, as you know, we have...
Parents with disabilities
Special needs support sessions
Special needs: children
Special needs: education
Special needs: legal/financial
Special needs: recommendations
Special needs: teens and pre-teens

Do you think it might be a good idea to lose some of these, given that some of them (legal, education, recommendations, in particular) are quite underused?

Would it be better to have fewer topics, so that every OP was more likely to get replies to their threads?

Or do you think the balance of Topics is fine just as it is?

Please do let us know...

OP posts:
Lougle · 21/05/2012 12:24

I think the trouble with that simple method, Helen, is that often when people first post, they don't know what needs to happen. So they might put 'behaviour'in the thread title, but the thread might actually hinge on inadequate educational support, for example.

zzzzz · 21/05/2012 12:24

This reply has been deleted

Message withdrawn at poster's request.

HotheadPaisan · 21/05/2012 12:30

This reply has been deleted

Message withdrawn at poster's request.

Ben10NeverAgain · 21/05/2012 14:57

Helen, the techies must be able to do something like this:

ACTIVE SN (all posts within all sub-topics displayed)
---Special needs: xxxx
---Special needs: xxxx

I love the water board emoticon. However I've been told that there isn't an emoticon maker at MNHQ so we can't get our goose emoticon :( Surely MNHQ can employ an emoticon maker for the purpose of goose making??

Davros · 21/05/2012 19:28

Oh dear, I wish I had never said that I am careful about what I say on threads relating to kids at the younger end, DS being 16.5yrs, but it is true.
I'm also guilty of not posting much on SN Teens although I wanted that section and do read it sometimes but I think the main reason is that I just don't use MN nearly as much as I did when DS was younger.
I also think it would be much easier if thread titles were very specific but I don't see how that one can be enforced. E.G. I always ignore something that says "Can you help?" but would be more likely to open and read and/or post on something that says "Can you help with bed wetting in 9 year old?".

PipinJo · 21/05/2012 22:00

This reply has been deleted

Message withdrawn at poster's request.

Davros · 22/05/2012 11:49

I don't post much for several reasons:

  • I just don't need the support and have developed other places for support if I do need it but I genuinely just don't need it so much
  • I don't think parents of younger kids can realistically help with issues such as "should DS be on the electoral register?", "which shaver should I buy for DS?" etc, whereas parents on the EGroup of his school really can help with those. I don't need to proliferate an issue to lots of groups iyswim
  • I have seen most problems and issues a thousand times on MN in the past 9 years that I have been a member and have posted extensively in the past. Its someone else's turn to answer! and there is always the archive
FallenCaryatid · 22/05/2012 17:36

I don't tend to start threads anywhere on MN, but I often respond to a question.
DS will be on the Electoral register, and he wet shaves now, because it's all about the danger!

PipinJo · 22/05/2012 23:16

This reply has been deleted

Message withdrawn at poster's request.

FallenCaryatid · 22/05/2012 23:21

I often can't help people back who have helped me, so I try to pass it on down the line and help someone else instead.
Like, karma, dude. Smile
joerapisarda.com/wp-content/uploads/2012/01/karma-1.jpg?w=300

StarlightMcKenzie · 22/05/2012 23:26

Same as me. Those that help me are usually way more knowledgable than I am. All I can do is learn from them an help the next person who asks!

WetAugust · 22/05/2012 23:54

But the person will be flattened by the last domino Confused

PipinJo · 23/05/2012 00:21

This reply has been deleted

Message withdrawn at poster's request.

madwomanintheattic · 23/05/2012 01:59

I have been pondering this, and my pondering has made me more confused. Smile

Fwiw, mnsn is reasonably new in comparison with, say, skinuk. And sn isn't the mn raisin d'être. (despite this, all good, the mnsn community has built up, but as a matter of course is still largely parents of younger children - this will change as time chugs along, obviously. The hiccups referred to that 'changed' the nature of the mn board have also prompted change in similar sites - (notably the Tia/ lanie tragedy and privacy concerns for skinuk etc). Media interest isn't new, but it has to be remembered that the mnsn media frenzy was instigated as a means of support for poster, whereas the skinuk interest was as a result of an external tragedy iyswim.

(rambling continues apace). Skinuk used to be all in one - teens and young adults mixed up with newborns and toddlers, not sure what they do now as I don't pay for membership (maybe someone can enlighten?)

I kind of see 2shoes as a Robin or Tia (I have no idea whether y'all know what I'm banging on about or not - but hopefully there are enough posters who use both sites to see where I'm going). Yes, posters of older teens/ young adults, some going through transition to adult services, some negotiating post 16. Usually these posters were in a position of 'giving' advice and support, because they had a wider experience of all things sn, and were old hands at negotiating the system. But sometimes they needed (and need, I assume) support, too, which certainly on skinuk was freely given. I haven't noticed any lessening of support offered to parents of older children (and I use children in all senses, inc young adults) on mn, and I wonder if it is as a result of infrequent posting (now) and newer posters not recognising faces, and so not being specific enough in the support offered? Everyone on skinuk knew that robin and Tia were the 'old guard' and responded accordingly. I don't see it being any different here, tbh, if faces are recognised.

Not having experienced an issue doesn't preclude anyone having empathy, tbh. And offering a shoulder or bouncing ideas around. I'm sorry that 2shoes and dev feel excluded. I do pop on occasionally and respond to posts in the middle of the uk night, but hadn't been aware of any ostracism. I know I've chatted to dev once or twice of a difficult night. Grin

I think the support is here if you are prepared to accept that people won't have the same experiences (yet) but I do agree that this is probably where a more specific sn board like skinuk can offer a parallel support system for those in transition, where you will find those who have been there and got the t shirt. But if you do hop over, please do use mnsn as well! Otherwise we run the danger of the board only ever being a dx support board. Grin we need to woo our parents of older teens so that they become the robins and Tia's of mnsn. The fonts of all knowledge etc etc.

I use the term lightheartedly, with the understanding that the lovely ladies named get as much support as they give, when needed.

A note of warning. I find skinuk harrowing as I am there so infrequently, and the complex issues of those involved mean that the bereavement board is a sad necessity. It is a different place.

That said, the cp-ers have taken matters into their own hands and are chuntering away on their own support thread (got to get away from all this asd stuff somehow Wink) so I think the sn board is largely evolving of its own accord.

Anyway, congrats if you managed to wade through that and realise there is not a conclusion to be drawn but I wanted to get rid of the stream of consciousness drivel that has been buzzing round my head.

FallenCaryatid · 23/05/2012 06:16

'But the person will be flattened by the last domino '

Celestial dominoes of love WA. Groke the vibe!

PipinJo · 23/05/2012 08:28

This reply has been deleted

Message withdrawn at poster's request.

devientenigma · 23/05/2012 08:40

lol madwoman, I know exactly what you are talking about RE boards and the media hype. Thankfully you are up during the night for those, like me, who has difficult times Wink and now I am removing the splinters from my own arse after reading............Pip I have inboxed you.

PipinJo · 23/05/2012 08:44

This reply has been deleted

Message withdrawn at poster's request.

Davros · 23/05/2012 10:06

I absolutely agree with the Karma principle of not necessarily being able to help someone who has helped you but helping someone else when you can. Whenever anyone has thanked me for any help (quite a while now you'll not be surprised to read!) I always say "just do the same for someone else". Mind you, I think a lot don't but then they aren't lovely MNSNers.
I also agree that the teens section will thrive in time, you just all need to get there! The SN section was tiny years ago and now look at it!
Personally I don't feel unsupported as it is my choice whether to seek help and support and where to seek it. I am finding MN more useful for 9 year old DD (NT) now

devientenigma · 23/05/2012 10:33

or it could be that those not so lovely mnsners are just so stressed and caught up in their own plight to realise they have had help and support via a thread iyswim

WillowinGloves · 23/05/2012 11:21

Have just caught up with this thread and haven't read my way through it all so apologies if repeating ...
I'm not very experienced with these boards and would find it easier if there were fewer of them, so that I know where to go for queries/research/support (both giving and receiving). But I haven't sufficient knowledge to suggest anything more specific!

zzzzz · 23/05/2012 15:01

This reply has been deleted

Message withdrawn at poster's request.

Googol · 24/05/2012 20:09

I haven't read all the replies but I discovered this evening that Directgov has a link to Mumsnet's Special Educational Needs thread (down the bottom of the webpage under 'more useful links').

HelenMumsnet · 25/05/2012 12:37

Hello. Just coming back to say thank you - again. And to say that....

  • We will look into the feasibility of having an SN Active Convos - love the idea; we just need to make sure we can make it work.

  • We're thinking of renaming SN Teens - as SN Teens and Young Adults. Anyone violently object?

  • We're still looking at making SN: Education dovetail with Education: Special Educational Needs (ie the topic on the main Education boards). ie one topic that you can access from either MNSN or from Education. To do that, we'd prob have to make the access from Education restricted by the same opt-in as MNSN - ie it wouldn't appear in Active Convos unless you selected the option to make it appear. But we don't think that's a huge issue.... Unless you folks know better!

  • We're still wondering about Special Needs: legal/financial. Happy to keep it if most of you would find it useful - and make use of it.

Do let us know what you think.

And thanks for all your input and patience so far. We know this is all a bit of a headspin...

OP posts:
2shoes · 25/05/2012 17:11
  • We're thinking of renaming SN Teens - as SN Teens and Young Adults. Anyone violently object?

brilliant Idea