Friday Night Thread - Sign in here for cake, wine, tea or whatever takes your fancy

[LollipopViolet]

Just about to go and eat but thought I'd start us off.

Not a good few days - DBoyfriend was rushed into hospital last night with a severe kidney infection. I know he's in the best place but I usually chat to him at night on Facebook, so I'm lonely, first night we've not done so in 6 months :(

Uni got VERY stressful, but has calmed down now.

And I got cuddles from friend's 8mo DS, and got to take him to softplay. Was good fun - although tricky for us to climb in with him. I remember it being so much easier. He has an obsession with my glasses now. Oh, and trying to eat my acrylic nails...

Hope everyone is OK :)

Waves at Coff33 before going.

Coff33, did your gov meeting come to any conclusions?

Everyone gets in so quickly!

I really am going to struggle to keep up tonight, as i have temporary nystagmus, which means that reading is really hard as it makes me feel nauseous (but dammit, its Friday night and I WILL MUMSNET!!)

The temporary nystagmus was caused by a reaction to tramadol (which also involved low blood pressure, feeling sick and being so dizzy I couldn't stand up -scary!), which i took for a migraine, well I thought it was a migraine, but the dr says I have an ear infection and a virus. Anyhoo - I have been feeling crap, but a bit better now.

Best news of the week is that ds took a couple of wobbly steps on his own!!!! He is 22 months old tomorrow and we are waiting for a walker to be issued by OT, to try and encourage him to walk and build up some stamina. The only trouble is we terrified him so much with our screams of joy that i doubt he will do it again for a while!

Right I will go back and read the thread, but bear with me if I don't catch up, as I will be feeling a bit seasick!

Hazey! Woohoo your DS! Hasn't he just started crawling? There'll be no stopping him.

Ellen, I've sent a fact-finding pm to the secret source... thanks for reminding me!

Yay for takeaway and rum 'n' coke!

Woo Hoo! Hazeyling! Ellen, dickead it is

DS2 loves his weekly RDA. The people there are really nice, and you can hear him giggling and laughing all across the arena when they are trotting. Trotting is his all time favourite part of RDA sessions.

Woohoo hazey!

Can't wait till DD is old enough to do rda. I think she'll love it...

fab news hazey

I'm hoping dd3's teacher will email some photos of the riding.

Hello all!

Been lurking and one thing I want to say!

Don't you all think as parents of SN kids we all deserve a bottle of champagne on the NHS every Friday night!? We've made it through our weekly DCs challenges, appointments, medicines, arguments with schools, LAs, officials, work. Dealt with our own/partners stress or bad health, tax cuts, DLA, fuel rises, need I go on... Maybe we'll all be made Dames/Sirs in the distant future! x

Mmmm, champagne....

yay ninkynonk!

Yay hazey! :) I have permanent nystagmus, part of my sight DX, and it's annoying when I'm tired because it's the only time I notice it.

Can't believe I'm voluntarily going to uni tomorrow to do work.

DBF is a type 1 diabetic, so I think that's why they've kept him in for these 2 nights.

Even all

Sorry no hope of catching up now and will pathetically admit to being too tired to read.

Welcome back Galena.

Horrible week here, with one high point of watching ds2 play in a 300 child strings concert midweek, which was lovely. Would have been nicer if he hadn't spent the entire performance in pain due to a combination of crappy seating and his leg problems.

Had the biggest fight we've ever had with dh last night involving much shouting which unfortunately resulted in waking up all three dcs. Still not resolved things or even made up actually - but suffice to say, he's in the wrong - obv! I may consider speaking to him if he brings offerings of chocolate - but as me asking for him to pick me some chocolate up while he was at the shop was part of what started the fight, I'm not holding out much hope. Apparently, its a slippery slope and if I'm not careful I'll get fat again!

Had a meeting with his teachers this afternoon - was only supposed to be one teacher, but I was on my own and duped by a very obviously pre-planned knock at the door ten minutes in and then another when the meeting went past whatever time they'd agreed with the second teacher to interrupt and end it. Still, I think the scarier of the two teachers eventually realised I am not out to cause trouble, I'm just a worried Mum and there are some simple things they can do to help ds, so not a bad outcome, despite being a very uncomfortable meeting.

Had a huge penny drop moment about the connection between my health problems and ds2's recent hypermobility dx. Suddenly realised that my atypical ms brain lesions and accompanying stroke-like episodes could be attributed to EDS and probably fit that dx better than the MS one and if I'm right, we all need to know and be tested, because the implications are not good. So I need to contact both my neurologist and ds's paed to make sure things are properly followed through and investigated. Here I go again making a full on pita of myself, being a pushy parent. I hate having to keep doing this.

Ooo, to end on a brighter note, Legoland was great. We all had a really good weekend, despite rain of epic proportions and I did in fact brave the hotel pool in my new swimming togs. Only thing is ds1 has been sobbing on an off ever since because he can't cope with the fact the trip is over.

Just read back a bit and had to say ... GO MINI HAZEY!

and

Hi moose!

Ninkynonk, that sounds a great idea...

moose at dh, my ex used to do that too.... sorry to hear about health implications...

Hi moose. Pardon my ignorance, I should JFGI really, but is EDS a worse prognosis than MS?

Well, if it's the type of EDS that has vascular involvement (hence vascular brain lesions) then yes, because it means a high risk of potential aneurysm and/or heart problems - so potentially dropping dead with no or very little warning, as opposed to regular relapsing remitting episodes and possibly, eventually a slow decline.

We do know that my great grandfather, grandfather, mother, myself, my sister and ds2 all had/have hypermobility to a great enough extent to get a diagnosis - what we don't know is what type of hypermobility and whether or not it's the scary type. However, I was told by my neurologist that my brain lesions appear far more vascular in type than typical MS. Apparently TIAs and stroke-like episodes can be a sign of vascular EDS and I also have quite a few of the physical markers, so there are enough red flags for genuine concern.

Never thought I'd be thinking I hope it's MS though.

Yes, crawling one week, toddling the next - he'll be in the olympics next!

Somehow this afternoon, I seem to have managed to arrange a TAC meeting, without even realising it! Hopefully we might be able to sort out ds's nonexistent SALT.

Can i just add....

NINKYNONK FOR PRIME MINISTER !!!! CHAMPAGNE FOR ALL !!!!

Blimey, moose If it's DXed are there any treatments? just tell me to sod off if you'd rather be eating chocolate.

That's brilliant, Hazey. I love a bit of good news!

sorry to crosspost with you there, moose.

It's going too fast tonight, Hazey!