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G-tube/peg users, support and advice :)

29 replies

fazsaeed · 26/03/2012 23:50

helloooo
My son is going in for peg in 2 weeks.
What should I expect?
What experiences have you had?
How have your lo's coped?
My ds is 18 months.
Thanks

Ooo also anyone got them character gtube pads? That go under to help stop granulation skin? I've seen them from America but would like something closer
Thanks
Ps
Any advice, chat anything welcome
X

OP posts:
fazsaeed · 30/03/2012 23:06

I'm questioning aspiration now and slow gastric emptying.
He keeps getting chest infections and when he's sick he brings up most recent meal plus previous meal. Like today he wouldn't have food through syringe s I tried him with hotdogs as he used to like them.
He had a few bites. Them few bites came out 8 HOURS later!
He's done that a few times.
I'm thinking about asking for referral to gosh.
If I had so many thousands of ££££ I'd pay for it myself.
But that's why we pay stuff like tax and what not.
I live with my parents and they are sick of their Wilton carpet being vomitted on everyday.
I'm defo having laminate flooring when I move out lol.
X

OP posts:
fazsaeed · 01/04/2012 10:23

He's been really bad :(
Even bringing up just water
Which is a first for ds.
:(

OP posts:
SallyBear · 02/04/2012 21:37

Someone on FB posted this link about Blenderized diets for tube fed children. here

fazsaeed · 03/04/2012 13:32

Thanks. Will check that out.
How's your dc?

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