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SN children

Here are some suggested organisations that offer expert advice on special needs.

I know this is probably the wrong place but figured I would probably get some experts...

5 replies

youcantpolishaturd · 28/02/2012 11:48

WHY, WHY, WHY, is it so hard to get these conditions recognised and by people who are supposed to help us? I should know better, afterall it took over 3/4 of my life to get my conditions fully recognised. His mum agrees, his aunty who is a teaching assistant and has a son with AS/ADHD agrees, but NO it is so hard to refer to a simple expert, or even, have a piece of paper with an appointment on without it taking 6 months..

First doctor "Yes fine, yes there is a cause for concern, yes we will refer you"
Ring surgery week later to check on progress and to check whether letter has been sent "Yes"

Wait 6 months, get fed up of waiting for said letter, make appointment to use "choose and book" service as it sounds quicker and easier.

Get there. Dr says choose and book service not offered. Dr doesn't listen to both of us. Dr says if you were fine at school and can graduate you wont have it (dp wasn't "fine" at school, just had a crappy senco that refused to accept there was a problem as he excelled academically at primary.). DR says what are you going to get from getting a diagnosis at this age, we dont like labelling people. Dr hands dp a quiz about anxiety and depression. dp only becomes anxious because his brain works a certain way, in certain situations. He is not depressed. Dp points this out. Dr says will talk to other doctor about whatever is appropiate referall And that we must not get hung up on a particular diagnosis.

Dp may not have adhd. I know that. All I'm asking is that someone who knows a hell of alot about it can asses him. I will trust this decision. It may be A different SPld. But something isnt Right. I know this. The drs dont live with him 24/7. As far as they are concerned he is perfectly fine Because they cant See it. I suspect that they think I am being a pushy gf, I do not mean to be difficult, I just want the best help and understanding for dp!

Why can't they understand this? vents

Any success stories or Tips?

OP posts:
TheLightPassenger · 28/02/2012 12:07

chase up the hospital where the referral was sent to 6 months ago, make sure they actually received it.

find a more sympathetic GP. sympathies re:the non-labelling rubbish.

youcantpolishaturd · 28/02/2012 12:10

TLP, we have got another appointment with the origional dr to ask him what progress has been made, for an adult asessment, how long should we expect to wait?!

OP posts:
TheLightPassenger · 28/02/2012 12:12

again I would call up the hospital, to find out 1)what happened to the original referral and 2)likely wait times. GP may not know the likely wait time if this isn't a common request. Afraid that my experience with SN etc assessment has led me to believe that to do a job properly you have to do it yourself, playing phone tag and all.

youcantpolishaturd · 28/02/2012 12:20

TLP, thanks very much :)

OP posts:
coff33pot · 28/02/2012 17:21

You got to play bully I am afraid. Did you get a copy of the original referral letter sent? If not get one. If you have ring ring and ring, tell them you will accept a cancellation and you will ring each morning to check if one has come about. Do it till they are sick of hearing your dp name Grin

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