gonna cut a long story short, my son is 9 and has hemiplegia and wets the bed every night :( my youngest daughter is 3 and has severe constipation for 18month now, she is on strong medication which makes her have diarrhoea ....
we live in a council property, our boiler system is rather old and its the one you need to switch on an hour prior to wanting hot water...
this is not ideal as i need constant water for 2 of my children :( my health visitor and my daughters padetrician have wrote letters on my behalf which i handed in to the local council office stating i needed constant hot water. the estate manager came to see me and basically said well cant u turn water on for an hour at 12 then back off and on later..my reply- i cant guess when my children are going to wet and soil the bed, he then told me to keep it on all night,my reply was i couldnt afford to, he then said to it the old fashioned way and boil the kettle :o
needless to say they arent going to help me, nor social services as they dont do that kind of thing....really dont know where to ask next....
any suggestions...iv read abot disabled facilities grants but when i asked the council to put me through to correct department she said she hadnt eard of it...
im so angry :(