borjeson-forsman-lehman syndrome

[mumnjohn]

the doctors think my son has this very rare syndrome.

has any1 else had any dealings with it?

:(

Hi didn't want to leave you unanswered

my ds has a rare genetic syndrome and it is hard to find others in the same boat, sometimes the symptoms of syndromes are similar and you will find support on here for that

In the meantime have a look at www.rarechromo.org/html/home.asp

Hope you find some support

x

You could try contacting Unique

www.rarechromo.org/html/home.asp

Oops cross post!