bit long sorry hyper mobility

[beca74]

my dd is 14 months old she has hypotonia,hyper mobility,spinal cord defect and plagiacephly she's very happy in the day but crys at night shes in pain but i dont know where been to gp and she refered us back to paed calpol just doesnt work and not sure what to do to help her she clicks alot too and never cries for no reason

I'd ask the paed if they could possibly refer her on to physio for some help. Calpol only really masks some of the symptoms and won't do anything to help her get stronger, since exercises to increase muscle tone will help to support her sore joints.

If you search for the EDS hypermobility 2 thread in this SN group, you'll find a lot more collective wisdom :)

here
www.mumsnet.com/Talk/special_needs/1306805-EDS-Hypermobility-No-2?pg=1

thanks