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13 replies

hohoho291 · 03/12/2011 12:35

Please can you help, I have entered a clip of my daughter into a competition to win £10k for charity which is Alstrom UK, My daughter has Alstrom Syndrome a rare devastating condition that causes childhood blindness, heart failure, kidney failure and numerous other medical problems. It needs views for it to be in with a chance of winning. www.alstrom.org.uk/news/film-making-could-help-raise-funds-for-asuk it is a bit of a tear jerker but hopefully the clip will also raise awareness of rare diseases and organ donations. Please feel free to share on face book or twitter or email. Your view could really change lives. Thank you so much.

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beca74 · 03/12/2011 12:49

your little girl is truly beautiful and you are an inspiration to all

Original poster
hohoho291 · 03/12/2011 14:15

Thank you beca74 you are very kind, I know this money if won would make such a difference to children with Alsrom and because of the work the charity does, children with other syndromes. Thank you so much for viewing, just that means so much to us.

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Original poster
hohoho291 · 03/12/2011 14:18

Here is the direct link if it helps

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coff33pot · 03/12/2011 14:45

You have a beautiful family and what a wonderful little girl she is :)

Original poster
hohoho291 · 03/12/2011 17:02

Thank you coff33pot, for your comments and thank you for watching, she is a amazing inspirational little girl we are honoured to be her parents. xx

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lisad123 · 03/12/2011 17:09

What a lovely video and of I'm honest had never heard of her disorder before. I hope you win and get your charity alot of support and bring some hope for future.
She is very cute, loving those little glasses

happymole · 03/12/2011 17:10

Have viewed she is a beautiful little girl Smile

Also wanted to say that my lovely cousin has Alstroms, she is nearly 20 and is going to college and doing fab.

Original poster
hohoho291 · 03/12/2011 21:39

Thank you lisad123 not many people have heard of it before, even doctors and consultants, thats part of the reason for doing the clip, thanks for your lovely words, she is far to cute but I am probably a touch biased hehe.

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slowburner · 03/12/2011 22:41

Wow. What an absolutely diamond film about a seriously gorgeous, determined and wonderful girl. I
Had not heard of this disorder before, I hope the campaign raises awareness, hope and funds

Original poster
hohoho291 · 03/12/2011 23:19

Thank you slowburner for your view and wonderful comments, it is already raising awareness and fingers crossed (and everything else) that we win the funds for Alstrom Uk. That would be amazing if it did. Your view has helped give it a chance though so thank you xx

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moosemama · 03/12/2011 23:46

What a beautiful film and an even more beautiful little girl, with a gorgeous smile. Smile

I will pass on the link to as many people as I can think of.

I really hope you win the funds.

Good luck.

Original poster
hohoho291 · 04/12/2011 08:35

Moosemama awww thank you for your lovely comments and thank you for helping to pass it on, you are amazing. x

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Original poster
hohoho291 · 05/12/2011 13:20

Thanks for all of your support,Thanks and the lovely comments it means so much to us as a family. It is comforting to think that my daughter has made a impact and is helping to make a difference, and raising awareness does make a difference

If just one person is diagnosed correctly, or 1 person joins the organ donor register then it has. Please keep supporting this clip, sharing, tweeting and emailing and please feel free to like and comment on here and on you tube because with your help we have hope. xx

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