Hi all, my name is lauren and i am the project coordinator for SWAN UK which is a support project for families with children with undiagnosed genetic conditions / who are going through the process of diagnosis. If you would like to be able to chat to other families in similar situations to you and access information about genetics please do come and find us on facebook under SWANchildrenUK or check out our blog www.swanuk.wordpress.com. You can also contact me directly on [email protected] or 0207 7043141.
You can also get accessible information about specific chromosome conditions from UNIQUE, the rare chromosome disorder support group, www.rarechromo.org
Take care and good luck, Lauren