Spina Bifida

[mum2seb]

Hi,
I'm new to mumsnet, and was wondering if there was anyone else out there with a child with SB? My son is 18 months, and was born 7 weeks prem with a myelomeningocele very low down his back (on the sacrum). We catheterise him 2x a day, and he has AFOs, but he still isn't walking yet (although his Physio says there's no reason why he shouldn't - I think he's just very laid back!). I know SB is very few and far between these days, but it would be nice to hear from other mums who are having the same/ similar experiences to us. Thanks

Sorry, no knowledge of this, just wanted to say "welcome to Mumsnet"

I'm sure somebody will come along who will know more than me, you will find lots of support on here

Hi Mum2Seb,
I have a condition called {http://www.asbha.org.au/Occulta.htm\Spina Bifida Occulta}. I have lived with it all my life and although I have the characteristic dimple in my back along with the abnormal hair (I remove it with Immac!) and the strawberry mark, I do not have any problems whatsoever. The only reason I am aware of it, is because I had epidural problems when I had my ds. I am sure someone else will be along shortly to give you their story.

Sorry try again SPINA BIFIDA OCCULTA