hi

[tranquilitygardens]

Hi, it has been suggested that I post on here, I had a right meltdown and rambling in Chat

www.mumsnet.com/Talk/_chat/1291450-Prejudice-and-general-oddness-of-professionals-long-one

I am feeling quite dreadfull right now and teary.

I haven't clicked on your thread, (as teatime madness is still in progress, ).

But I just wanted to say 'welcome', can honestly say the people on here have been absolutely fab, really lovely and new poster's always welcome.

If you want to 'chat' a bit more, get to know people, the 'Friday night too tired' thread is always to a good one, people come on and chat about how the week has gone. (happens on a friday) .

I will check out your thread when I get a min, but didn't want you to feel we weren't listening...

Hi sign, nice to speak to you, having a dreadfull day, I hope you can make sense of my post it was garbled due to emotional outspill. The only people who knew that stuff were a friend at the time and my Mum, and later two professionals, I have kept so much to myself. I nearly collapesed the day when the false allegations happened, and I took ages to tell the psychologist and kept having panic attacks trying to tell her, it is still horrific for me to come to terms with everything.

tranquilitygardens

I have just followed your link, there is a related EDS Hypermobility thread you may be interested in looking at which is they various issues
Ehlers-Danlos syndrome (EDS)
Joint Hypermobility Syndrome
Marfan?s syndrome
I hope this helps

Dolfrog, thank you for the links, that Marfan Syndrome interested me regarding the occular issue, I have been having problems with my eyes and was checked out prior to the eds diagnosis, my sight is getting worse, double vision as time is going on, I feel that because nothing was found wrong that it will be put down to psychological if I create a fuss, now that I see that I feel maybe I should say something again, I dno't know I have no confidence and feel I will not be heard. I know that there are overlaps in the types of EDS, I dno't have the long limbs that Marfan syndrome has a feature of though.

The mitral valve thing worries me about my youngest.

hi hae seen this come and join us on our thread