curious to know what services a child with down syndrome should be getting.....

[devientenigma]

..........yes a bit vague really, but just wondering what my ds is missing out on with not being in school. Plus all our services seem to be withdrawn.

Hi Devient

My DD is only 14 months, but so far she is getting support from the following:

Paediatric consultant
Portage
Physio
OT
SALT
SENCO
Audiologist
Opthamologist
Cardiologist

Whoops forgot to mention the Educational pyschologist - but all she seems to do is take copious ammounts of notes, so no idea what she really adds yet...

Thanks proudmum, he's too old for portage. His GP, SW and cardiologist are great. I know physio, OT and SALT are letting him down. His resoiratory, audio and optamologist are ok. Just have a few niggles as to what else was letting him down. He is also under the behaviour team, psycologist and psychiatrist who are hitty missy!!

My list is pretty similar to proudmums, ds is 3.5

developmental paed
portage
SALT
Nursery SENCO
Ed Psychologist
Audiology/ENT/opthalmology

We don't and have never had NHS physio or OT (unless you count the physio that measures ds feet for piedros every 4 months or so and tells me what a good job I'm doing