how to get a mac major/wheelchair for asd/dyspraxia/hypermobile joints?

[yoshysmum]

Who would I see to get the above for my son? He can manage fine on shortish walks but on long walks or very hilly areas he is in pain and tires easily.

We have a self referal physio at our gp surgery, would that be the right place to go.

He is on the waiting list to see an o.t but have been told that appt is months away.

I would see both physio and OT. Even if the physio can get you the chair it defiantly can't help to have her backing

that should have said can't hurt, sorry

Have you tried asking the gp for a referral.I would go and see him and tell him you need an urgent referral.The trouble with wheelchair clinics is thaqt you can wait anything up to a year for a wheelchair-it depends which area you are in,certainly where i live it can take that long.Physio's generally do not get too involved with wheelchairs it is more the ot's.hth

Sorry for not replying sooner, been dealing with ds and friends.

I will make an appt for the gp then and get another ball rolling.

Everything is a bloody battle isn't it, from statutory assessment to dla to wheelchairs.

yep unfortunately so hope the wheelchair clinic are helpful if they are anything like ours you will have to fight.Good luck.

Thanks

My comm paed arranges my ds wheelchair have had 2 so far, when i saw her on monday told her one i have is getting a bit done now as i got about 2 years ago no problems will write to westmarc, normally appoint comes within about 6 weeks and chair follows few weeks after. My ds is 10 can walk (but selective) has severe autism, GDD, low muscle tone. Im in scotland so dont know if different where you are but i always get chair and mac major through referral from comm paed. HTH

Hi Shazian am really envious at few weeks wait for chair.

i bought one off ebay (used). i asked OT and she said 'well by the time we send you to paed, then they contact wheelchair services blah blah' i just went ahead and bought one. cost me about £100 delivered