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How much help does your child with CP get ?

2 replies

SweetPotato · 22/10/2005 22:25

I seem to spend my life ferrying dd around from one appointment to another but in fact when I actually add up what help she is getting it is really just 25mins per week of either physion or hydrotherapy, and that is it. The rest of the time it is just people sticking their oar in and talking about her CP and of course portage and playgroups which I don't count because so far that has all been total bullshit I am afraid.

It just doesn't seem very much to me. I feel really under pressure to do her exercises every day and feel like I never leave her alone, but then if I am not messing with her legs all the time then nobody else will. So much so that I have given up plans to go back to work because I thought if I am not with her all day to do her exercises etc then nothing will be doen to help her.

It just feels a bit like actually the docs expect me to do what I can and apart from that we'll all just keep our fingers crossed and see how she develops naturally. I suppose I was expecting the docs to be much more hands-on eg regular hands-on physio by them, not just me. Am I very naive?

(DD is 18mths old and her CP affects her legs and lower abdomen)

OP posts:
fairydust · 22/10/2005 22:28

you just decided me to the "t" there - i gave up work as well - dd has one weekly phyiso appointment the rest is left to me.

She is in nursery 5 times a week -mornings which she loves and gets so much out of but it's very stressful - yet i feel i shouldn't moan as she is doung better than they ever expected.

chatee · 23/10/2005 08:21

sorry to be the bearer of bad news but that's how it is....stinks doesn't it.
in fact now my dd is at school it's worse because all appointments are made with school during school time and i have noticed that quite often they are cancelled.....easier to cancel with the school than to cancel with a mum who will say they are not happy
whereabouts are you sweetpotato??
come back and chat if you want to as there are lots of people on mn who will help you and lots of us that knowhow the system will try to deny you and your dd the things that she will be entitled to...
take care xx

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