DS aged 12 (deafblind CP and epilepsy) has just had a jejeunal tube inserted, life has been 100% improved for him no reflux no more discomfort hurrah! However I am having trouble with his medication, he has anticovulsants which I have to dilute in 50mlsx2 a day with water and have been told by the hospital pharmacist to give at 1ml/minute! Have asked local nursing team who seem to be sitting on the fence. Help time is of the essence when you need to get 5 out by 07.30! No I cannot get up any earlier!