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Here are some suggested organisations that offer expert advice on special needs.

Anyone any experience of........

4 replies

dizzy34 · 09/10/2005 00:55

Vagal nerve stimulater. We are going to see the epilepsy nurse specialist next week, although consultant has already agreed to this. I have done lots of research but wondered if anyone had first hand experience.

OP posts:
MrsForgetMeNotFul · 09/10/2005 22:54

bumping 4 u!

dizzy34 · 10/10/2005 07:44

guess not then...never mind.

OP posts:
Bethron · 10/10/2005 09:32

This reply has been deleted

Message withdrawn

r3dh3d · 10/10/2005 11:59

Try posting it on this specific epilepsy board: www.epilepsynse.org.uk/pages/contact/threaded/

I'm sure there's someone on there who has had VNS (most of the posters are adults with E rather than parents) though it may take a few days for them to answer.

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