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Original poster

CAN MUMSNET HELP US???

179 replies

gilly3 · 25/01/2011 13:35

Dear mumsnet,can you help the the parent/carers on your forum,by possibly sending all of our stories to the pm,or helping us to keep the stories in the media,it would be a great help and i,m sure you would have all of our support.
WHAT DO YOU SAY MUMSNET?ITS GOT TO BE WORTH A GO,HASN,T IT?.XX

OP posts:
Peachy · 25/01/2011 20:05

I'd absolutely not want my story sent to the PM.

If you want yours approach the papers that covered it last week: you never know.

gotchababe · 25/01/2011 20:33

Absolutely gilly3

My posts/stories can go. Not long home travelled nearly 400 miles round trip today sourcing a Special Needs Placement/Provision for my son.

Never ends.

Mumsnet send my Posts to PM. The PM intervened when the LA was going to close his sons Special Needs School. (sadly his son passed away)

Why can't he intervene in other LA 's incompotent and unrealistic decisions! concerning our DC?

beachholiday · 25/01/2011 20:48

I dont think HQ are going to send our posts to the PM and frankly I'd dereg pronto if they sent mine.

Please dont ask for all our stories to be sent gilly - ask on your own behalf or do a thread inviting people who actually want that, to contribute.

I sincerely doubt Peachy and I are the only ones who would not like that idea at all.

With regard to keeping the issues of carers/respite/DLA/ringfencing/disabilty rights etc in the media by other means (campaigning, petitions, letters, webchats, interveiws with those that want to do them) I would give full support.

The issue is still alive in the media so if you want to tell your story now is probably still a good time - "localism" and its failures were being discussed in the weekend papers with regard to councils failing to offer adequate support to carers and there were 2 letters in todays guardian:

here

Jimmychasesangels · 25/01/2011 20:50

no way
never ever do I want mine used thanks

AlysWho · 25/01/2011 20:53

Thanks for posting the articles, I hadn't seen them.

I agree with beach and peach - one size does definately fit all.

AlysWho · 25/01/2011 20:54

OOPS! one size does NOT fit all I meant too say..its been a long day.

zzzzz · 25/01/2011 23:01

This reply has been deleted

Message withdrawn at poster's request.

Original poster
gilly3 · 25/01/2011 23:22

didn,t mean to offend,god knows life is tough enough,but if you don,t ask ,you don,t get.beachyholiday,i thought that went without saying that only people who felt it might be a good idea would post,but thanks for feedback.
have done local papers before,and campaigned for aiming higher money to be ringfenced,seen local mps,but one voice never seems loud enough,thought if mumsnet helped ,it could help the voice of us all to become too loud to ignore.
didn,t mean that all these types of posts should be sent,but that mumsnet could set up a page for us to blog an outline of our individual stories,struggles with authorities etc...to be sent on,let me know if thats reasonable or not.xx

OP posts:
WetAugust · 25/01/2011 23:30

No thanks. If my anonymity is compromised I shall leave,

Original poster
gilly3 · 25/01/2011 23:45

fair comment wetaugust,but since we are all annons on here,could it hurt.x

OP posts:
donkeyderby · 26/01/2011 00:04

Every Disabled Child Matters campaign to get people to email their Local Authority and ask them how much money they are allocating for disabled children's services. Please email your LA if you can here

donkeyderby · 26/01/2011 00:06

Or maybe here

Goblinchild · 26/01/2011 00:18

I feel the same way as WetAugust.
Gilly, how long do you think an individual would remain anonymous if an interesting story hit the media? Nanoseconds?
Please act for yourself, but think before attemping to wildly sweep all up in your path.
I will bite.

donkeyderby · 26/01/2011 09:00

I think Gilly was just making a suggestion that she thought would be helpful. It's getting a bit snappy on here.

I like the idea of harnessing our power as a group Gilly and it would be something positive to come out of this media circus recently. This might not be the right way, but it would be great to do something

ouryve · 26/01/2011 10:41

Gilly, if I had a story I think the PM should hear, I'd send it myself and not via a public message board.

Triggles · 26/01/2011 10:45

Sorry, but have to agree that I do not want my information sent to the media. I won't even discuss SNs on facebook regarding my DS2, so the media is waaaay more than I'm interested in. I'm quite happy for us to share here.

doricsue · 26/01/2011 11:07

im new to this and came on here for a bit of support but have now changed my mind, its full of sniping nastyness, i agree with you Gilly, if we want to be heard we have to shout it from the rooftops, it doesnt mean you have to give out names, address and personal details so you get identified and i think it would be a good idea if as many people from different LA as possible did this to point out the disgracefull level of care and support ourselves and our DC recieve throughout the entire country, ( im scottish )so yes i would do it.

gotchababe · 26/01/2011 11:38

gilly and doricsue, agree entirely.

Griping, sniping not on. No wonder nothing ever gets done to help our plight with some given sentiments. Shock

AlysWho · 26/01/2011 12:37

'I think Gilly was just making a suggestion that she thought would be helpful. It's getting a bit snappy on here.'

I agree. Surely the whole point of a forum is to voice ideas/thoughts and get feedback from others. Discuss.

I'm a little wary of being 'eaten alive' by some highly literate and outspoken members of the establishment. Guess you'd think I'm a wimp for that though? Blush

Peachy · 26/01/2011 12:44

The suggestion for a blug page was good, although I now the broken of britain campaign (may have name wrong) is collecting testomonies anyway.

many people though responded to the OP as is ever the case on MN; personally whilst I will shout in manyways I don;t aprticularly want our individual story out as it involves violence from a DS and I want neither the SSD - forced ijnput on that (thay have already suggested reporting him to Child Protection- not a hope!) or the potential labelling of ds1 that would follow him if we move, as we hope to do some time.

bullet234 · 26/01/2011 12:45

Maybe Munset could pass on details of potentially interested media if the poster specifically asks for it.
Personally I would shy away from the media. If I'm going to be judged and assumptions made about me or my children, I'd rather it was done in a smallish environment like this, than in a very public arean such as the newspapers.

Toppy · 26/01/2011 12:49

I think there are just a lot of people (myself included) who find the SN board a safe and importantly anonymous haven to come and cry and ask for advice in order to go back in real life feeling a bit boosted and reinvigorated to deal with the very real problems they have there.
I am sure any snappiness is sheer panic that this is potentially under threat. I have only been here for three months but am right in the middle of what is for us a very serious and scary time and my initial reaction on reading Gilly's thread was 'NO NO NO !!!!!!!!!' in a panicky way. I need to come here in private and in no way would I wish what we are going through right now to end up in some article in the Daily Mail. I don't even want my husband to read half my posts !

Please don't see any snappiness as bitchiness or nastiness. These SN threads are anything but. I am CERTAIN the snappiness is just a knee jerk reaction to possibly being exposed which is the last thing most of us want

bullet234 · 26/01/2011 13:10

Arena. And what Toppy said.

doricsue · 26/01/2011 13:16

Alyswho is spot on, i am outspoken because i have had to become so through years of fighting with the LA to get help for my ASD son ( still not got anywhere ) but i do not want to be fighting people who are in the same or worse a position than myself, emails and letters can be written outlining the problems faced by carers and the lack of care or compassion from LA without any names being used to identify anyone.
we are all in the same boat and should be helping one another not sniping, i am just about coping at the moment but tomorrow is another day which might see me so pissed off that i ring the newspapers through desperation, Gilly was just throwing round an idea and did not deserve to be jumped on, are new members even welcome on here ?? as it seems to be dominated by old hands who dismiss you out of hand, very off puting for new members.

Original poster
gilly3 · 26/01/2011 13:24

goblinchild no need to make it personal,joined mumsnet to chat to people who are parent/carers like myself,don,t need abuse,when all i was doing was making a suggestion,wether you liked the idea or not,please keep it civil,or you,ll have parents/carers,who have come on the site for support and to share their feelings ,running for the hillsSad.
that said,thankyou for the constructive advice the rest of you have given,good to see the comments for and against,must admit it wasn,t the reaction i thought,but i didn,t take into consideration the annonimity side,which is what seemed to worry most of you.so sorry for that,but doesn,t stop me feelin frustrated that the powers that be get away with ignoring us and treating us like second hand citizens.anybody got any other suggestions ,that they have had success with,or things that they feel could help,not prepared to throw in towel just yet.xx

OP posts: