I'm linking to a document I received at work today. It's called "Cemented To The Floor By Law" and details the legal duties in relation to disabled children and their familes with which public bodies must comply.
It refers to England (and Wales?) but the law in Scotland is different.
It's not a particularly easy read, but if anyone is having a battle with their council/NHS board etc, it may be useful.
Cemented to the floor by law