how frustrating!

[fanjoforthemammaries7850]

DD is meant to be going to neurosciences unit in Glasgow for appointment with team there - was tertiary referral and we have waited AGES for it, was dreading it but hoping to get some answers.

and I am going to have to cancel as she is really ill with a hideous stomach bug and has been since Thursday.

Aaaaaargh, the over a year of waiting to see if she has a progressive condition will drag on even more.

Oh no Fanjo :( :(

Sorry she isnt well. Hope she is better soon and you get the answers you are searching for soon.

thanks. i hope we can get another appointment soon.

Oh dear, sorry to read this.

When you phone them I would ask if you can go on a cancellation list, if thats possible for you to get there at short notice, then someone else might have to do the same as you and you will take their appointment.

nor that easy as it's in Glasgow and we are in edinburgh and I can't drive but will ask.

i can't imagine we are the only people who have had to cancel at rhe moment.

i KNEW this would haplen - they are not answering the phone.

got through to a rather uninterested woman who said she'd speak to consultant and send out another pt, i asked about cancellations as we have waited a long time for the appt and she said she'll 'see what she has got' let's hope he will squeeze her in as it's fairly urgent i think.

prob a bit unfair to say disinterested, hopefully she is one of the good receptionists (like me ) and will sort something out.

of course now I am worried it's some rare neurometabolic linness making her so sick (that's why we were referred, neuro here thinks she has that).
i know it's more than likely a stomach bug but will probably call GP again.

Sorry dd isn't well. I hope that you get a cancellation through ( cross fingers for you.. Had to do this with ds.. About an hour layer they called with an appointment!)

also not sure if need to take her back to A and E who said take her back on Thursday if not better, she isn't really..but they didn't say how long to wait.

will hold off as she just ate a cracker and goggled, so think she is rallying just a bit late.

giggled

Hope she's on the mend and you get an appointment soon. x

thanks, i think she IS on the mend, hopefully we can get another appointment before too long and get it over with.

Sorry to hear this fanjo...I hope she is better soon and you get an appointment quickly. x