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Original poster

Neuro appt today, feeling stressed about it

211 replies

fanjoforthemammaries7850 · 24/09/2010 10:08

DD has an appointment with her two Neurology Professors today, just for a review.

They said on phone they have drawn a blank so I doubt anything bad will be said at the appointment but I feel absolutely sick about going.

I don't know if it's the fear they have missed something bad or the bad memories from the last appointment where we were waiting to hear she had something progressive.

Anyway I am all teary and need a kick up the bum! Sad

OP posts:
TotalChaos · 30/09/2010 12:38

you are having a horrendously worrying time, of course you feel tearful. as auntevil says, let the GP know how stressful it is.

Original poster
fanjoforthemammaries7850 · 30/09/2010 14:29

well the GP could see how stressful it is as I got into a real pznicy tizzy the minute I got in. She herself was upset and sad hearing my story and very concerned about me. Said i was right to go to see her and i am to go back in two weeks, gave me ADs. Got me to fill out a questionnaire on which I got maximum points on everything except one, don't know what that will mean. She wanted to sign me off but i said no as work is a break at the moment.

Got out and stumbled into a work politics situation though, supposed to be going to a night out tomorrow with just my manager/good friend, and two of the dental nurses, much younger than me. My manager texted me to say she is ill and prob not going, I can't face just going with the two nurses and a load of strangers, so they will be offended and the boss will be annoyed I am wasting his money on a ticket, I just can't face it though, could face a night with a friend but nothing more.Sent her some rambling replies, she will think i am a loon (she knows my situ though).

Just another stress.

OP posts:
auntevil · 30/09/2010 14:39

Glad the GP might help.
Don't feel stressed at not wanting to go. in the grand scheme of what you're going through, this shouldn't even be up there as a stress. everyone will 'get over' you not being there and things at work will trug along as normal.

Original poster
fanjoforthemammaries7850 · 30/09/2010 14:54

thanks. I just need ONE day without some silly stressors loading on me...

Seems like a small thing about the work night out but its the sort of thing i REALLY worry about, great timing to get the text while in GP surgery Sad

OP posts:
headinhands · 30/09/2010 16:52

Hi Fanj, right now you need to be a bit selfish when making decisions about committments whether it be work, social or even within the family. Think 'is this party/trip/responsibility going to help or not help' and just cut stuff out without worrying about what people will think. Like someone else said it's not a big deal. I know it can be difficult because when you're anxious about something you tend to feel anxious about everything else going on, you're default setting seems to get switched to one of fear and expecting trouble. Think of it like this; would you be miffed about someone backing out of a night out if you knew they we're dealing with the same feelings that you are? Of course you wouldn't. Be very gentle with how you're judging yourself Fanj x

Original poster
fanjoforthemammaries7850 · 30/09/2010 16:56

They don't all know whats going on at the moment, i think they think it is all fine just now. Sad

OP posts:
TotalChaos · 30/09/2010 16:56

glad GP was sympathetic. can you get your mate at work to sort things for you - without divulging anything you don't want divulged, surely she can say - Fanjo has a horribly worr5ying time, please lay off her.

Original poster
fanjoforthemammaries7850 · 30/09/2010 17:00

yes I will ask her, she is ill today though. She was lovely the first time round, when i told her about the tests, and told everyone for me (after making sure I wanted her to). As these tests were OK I think everyone thinks I am fine now, they don't know it's all starting up again, I am a good actress.

OP posts:
headinhands · 30/09/2010 17:51

I know about the acting! MY AD's kicked in v quickly. Made me realise how black I had been feeling. Given that you scored so high on that test thing I reckon you'll get benefit quite soon too Fanj. x

Original poster
fanjoforthemammaries7850 · 30/09/2010 17:59

I hope so , am currently feeling totally gutted as DD is ignoring me (she hasnt got ASD DX but presents as having severe autism), feels very rejecting. Sad

OP posts:
curlyredhead · 30/09/2010 18:07

Lurker here, I don't have any SN experience but I read threads a lot to help me understand other people's situations a bit better and be more understanding of RL situations.... But just wanted to send some hugs, it sounds such a stressful situation, and the back and forth with the neuros sounds horrendous. I have experience of neuros myself (for my own health) and most of the ones I have met have been pretty switched on, so I am gutted for you that these ones are messing you around.

As well as the hugs, I wanted to say something about your dd being able to draw some days and not others - I wonder if any of it is the usual switching between different things that any child would do? I'm thinking of my dds, all of mine like drawing (5.5, 2x 2.4) but only really go for it some days, others they completely ignore the drawing stuff. I don't know if that could be a factor? I don't know if that's at all a helpful thought, but wanted to throw it in there.

Will retreat to lurking again, apologies if this has been an unwanted intrusion. Good luck for your appointment on the 7th.

Original poster
fanjoforthemammaries7850 · 30/09/2010 18:08

Thanks. Smile

DH has just come in and started moaning about the fact the house is messy.

OP posts:
headinhands · 30/09/2010 18:12

He has arms and legs no? Or did you rip them off when he moaned about the house?

Original poster
fanjoforthemammaries7850 · 30/09/2010 18:14

I should have. He is probably just feeling stressed and now worried about me too though.

OP posts:
phlebas · 30/09/2010 18:14

(((Fanjo))) [

Original poster
fanjoforthemammaries7850 · 30/09/2010 18:15

Thanks Smile Now need to go and make attempt at clearing up house while DD and DH are at park, am normally a whiz at cleaning but it seems hard work at the moment, like am made of lead!!

OP posts:
Original poster
fanjoforthemammaries7850 · 30/09/2010 18:18

DH just called to say there is a cat outside, he knows I am cat mad and they cheer me up, so I suppose there is hope for him!

OP posts:
TotalChaos · 30/09/2010 19:15

curly - many of us on this thread have very little experience of neuro investigations, you have as much right as anyone else to post here, thoughtful posters are always welcome on this board, whether they have direct experience of SN or not

fanjo - glad DH is trying to cheer you up, does he know about you going to the doctors?

Original poster
fanjoforthemammaries7850 · 30/09/2010 19:30

curly - yes, all are welcome, I don't even know what is going on really tbh!

TotalChaos, yes, and now he is all worried about me Sad

OP posts:
headinhands · 01/10/2010 13:24

How are you Fanj? x

Original poster
fanjoforthemammaries7850 · 01/10/2010 14:26

NOt bad, feeling quite queasy, think its the tablets.

Had a bad morning, went into a cafe with my paper and a friend was sitting there with a mum from her DD's school, they were obviously having a private conversation, I didn't want to intrude, they insisted I join them but my friend was not pleased..I think I interrupted something.

Little things like that are hard when you are feeling low.

Then I met another lovely friend for lunch and then spoke to my friend from work who was really nice about my not going tonight so it all ended well.

OP posts:
TotalChaos · 01/10/2010 21:13

how you feeling now? glad the day got rescued.

Original poster
fanjoforthemammaries7850 · 01/10/2010 21:42

well, i am laughing as dh is pretending to try to grope me with mr potatoheads hands, a good sign Grin

OP posts:
headinhands · 01/10/2010 22:31

Hi Fanj, Hubby feeling a bit frisky? lol. you got much on this weekend? hoping you get some decent r and r and that the blardy weather cheers up a bit. X

auntevil · 02/10/2010 08:25

A threesome with Mr Potato Head - and I thought your day had picked up Grin have a good weekend.