Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Social services

19 replies

roundthebend4 · 11/08/2010 16:09

Following on from my rant earlier ,can I say top prize goes to Glittery

there not concerned about the kids there concerned about me using resources so it's down to money , silly things I asked about nappies for ds but hb informed me has to wait to 7:8 if not dry at night ok end of I thought but no apparently I'm asking for resources that not entitled to he'll it was just question to hb

Then there's the tribunal and that I'm not happy about the Ot recommendations so intend seek second opion make sure there's nothing else he will need for school ,thought this was a totally legit request to have second opion

then there's my private salt report because apparently should been happy with the shitu nhs report where he was seen once a term yet lea have gone with it

There not happy because I go private source things from other means ,if I'm not happy with the professionals on the nhs

They looked at Ds2 and my demand to be seen about his asthma duh this was same dc in and out hospital who paed refered to brompton like you see them if nothing wrong

They even brought up dd and constant Drs when young well that's because they failed to discover that she had compromised immune system which a paed found on s hunch

So it all comes down to how much were costing the Lea and the nhs how dare I want the best for him

OP posts:
roundthebend4 · 11/08/2010 16:12

Oh they mentioned about ds pd not being far of a nt 5 year old physically ,yet I'm sat here Reading nhs report that compared to a nt 5 ds is below 1% but hey that's almost normal lol only 99% are better than him

OP posts:
bigcar · 11/08/2010 16:27

it's a disgrace roundthebend, total disgrace Sad

SanctiMoanyArse · 11/08/2010 16:27

We ahd a letter today asking for a signature to agree closing ourr file
If the boys ahve been cured I hadn't notcied- the absolute reverse in fact! If ever we needed help its's now, I am really not coping well atm.

Have assigned refudsal to comply to DH who is phoning them tomorrow, We don;t want other services right now but last time agreeing to a file closure emant a year from asking before we could be seen. No chance.

roundthebend4 · 11/08/2010 16:46

once this meeting over sancti i am going get file closed and will never ever request anything from them again even if im on my knees or ask proffesionals for help and advice again, that includes my Hv apparetnly all health professionals providing support erm i seen hv once who did referal talked on phone regarding nappies

they even mentioned that i asked the ot about setting some goals and how can we work towards them as yes sessiosn are nice games but not actually acheiving anything

I asked them to help with teaching ds to wipe his bum , help with using cultery and help with how to hold pencil/handwriting and apparently that makes me pushy

OP posts:
roundthebend4 · 11/08/2010 16:51

once this meeting over sancti i am going get file closed and will never ever request anything from them again even if im on my knees or ask proffesionals for help and advice again, that includes my Hv apparetnly all health professionals providing support erm i seen hv once who did referal talked on phone regarding nappies

they even mentioned that i asked the ot about setting some goals and how can we work towards them as yes sessiosn are nice games but not actually acheiving anything

I asked them to help with teaching ds to wipe his bum , help with using cultery and help with how to hold pencil/handwriting and apparently that makes me pushy

OP posts:
roundthebend4 · 11/08/2010 16:53

oh and apprently everyone struggles for childcare yes but not everyone dc has sn but hey its not their problem i want him go Ms i go along if they cant cope, and hmm well sn groups not right for him as need be with his peers arghhhhhhhhhhhhhhhhhhhhhhh

OP posts:
SanctiMoanyArse · 11/08/2010 17:07

All I want is that if I can't cope any more with the violence (seeing as ds1 is pushing 11 now) or the bullemia gets worse I don't have to wait a year to be assessed next tiem for emergbency foster care or help.

roundthebend4 · 11/08/2010 17:16

i wanted help for ds to go to beavers access main stream activties as sn there is not the peer group without me having to tag along

OP posts:
SanctiMoanyArse · 11/08/2010 17:33

Ca Beavers not help?

We would have found a young audlt to support, and the local Beavers takes kids with severe SN and cope fine. Children more severe than ds3 attend quite well.

Beavers should ahve access to a disability coordinator who can advise

roundthebend4 · 11/08/2010 17:37

yes they want someone not so much for pd its the language issues i asked made conatc when agreed sn group had been going is not approaite for ds any more

OP posts:
roundthebend4 · 11/08/2010 17:40

he is falling between no sn and ms but needs supporting

OP posts:
glittery · 11/08/2010 18:00

ah sadly i thought i might be right! Sad
tis a common ploy of some social services to try and "scare" you off with the child protection thing as they know it panicks a lot of people into just leaving it.
the thing to do tho is just to keep at them as the way they see it is only someone who really needs help will keep on at them regardless, whereas if you do back off then you cant really be needing any help!

TotalChaos · 11/08/2010 18:01

this is, pardon my language, fucking appalling, that you are being pushed out by local SN group and being picked on by SS. You see - at the moment my DS also falls between the 2 camps - but at least there is a reason for that - that my DS tests within normal range for SALT, does fine at school (thus far...) without 1-1, access ms school and activities fine (thus far....) and has no physical disabilities. whereas I am very cross that you and your DS are being treated like this - as your DS has evident physical and communication related difficulties, and ms school broke down. sounds like there's a poisonous culture in your area.

sorry I feel I am not offering concrete advice, more righteous ire, but this just feels so not right.

SanctiMoanyArse · 11/08/2010 18:03

It's crap like this puts me off applying to be a SW tbh.

I so could not collude in this crap.

RTB if ssd aren;t going to help, who else have you approached?

roundthebend4 · 11/08/2010 18:35

Did try the local charity respite but they can't help due to his speech needs no one with signing which he. Needs as nit being able to communicate would frusrate him as lives chatting in his own way

am going to fade the Sn groups but hey ho looks like I'm going to be going to beavers to

Glittery it's worked it got me scared ,upset and angry once this over I'm never going to ask for help from any professional ever again do not need the stress

There even briininh Iin my tribunal request with lea as case for me being to pushy ,he'll tribunal seen reports etc and adgree there is ground to so have a date but apparently getting own reports us frowned on by ss

I have got nice big file that am going copy loads of reports so they can all have one each and then going to do a letter with bullet points for areas there pointing at all get copy of that to am going take as many of their arguments and pull them apart with their own reports

the Ot/physio one bring first since lol when Is 1% considered normal

Ironic or not I'm in same Lea as starlight who ended up with ss and cp arseache when she filed for tribunal

OP posts:
roundthebend4 · 11/08/2010 18:37

That's loves chatting not live

OP posts:
TotalChaos · 11/08/2010 18:57

/thud. this is looking quite systematic Shock

SanctiMoanyArse · 11/08/2010 19:03

That's really terrible

I gues you're already in with SOS!SEN? they love angry...

roundthebend4 · 11/08/2010 19:31

No but I'm going be am sancti once this out the way

of out in a moment have been going when dv at school: nursery to kick boxing class and just phoned see if I can attend tonights session as really need get agression out even if it's on kick bag now I do have choice for who it can be tonight

OP posts:
New posts on this thread. Refresh page