oh I do wish people realised how easy they have it

[2shoes]

just a bit of a moan, to get it out of my head.

just read a thread where people seem unable to cope with toddlers.oh wtf would they do in our shoes for a week
my BIL And SIL have jetted of with there 2 nt teen sons for a holiday, I mean a real holiday, not the type I will have in a week or so, where I just move to a different location and work twice as hard.......

moan over, green eyed monster back in it's box

I don't get frustrated with the fact that LFA children can access services and I do recognise that the services need to be different. I don't actually think the DSM change will affect that - as I understand it, there will be a severity level attached so it will be clear that people are on different places on the spectrum.

If anything, I'm made to feel as though I'm defrauding and making a fuss to get access to services, as if my child is taking them away from 'more disabled' children who deserve it more. I don't even tell most people that we get DLA because I don't want to risk getting investigated in case some nosy parker has decided we don't really 'deserve' it.

I still maintain that autism is autism though, because everyone who is dxd will be affected by the triad to some degree or another, by definition. I've seen newspapers describe AS as 'a condition linked to autism', as though it wasn't part of the spectrum, or a watered-down version. The general public get their information from articles like those rather than reading definitions in a diagnostic manual.

I think it's sad that the co-morbid needs of HFA aren't seen as important. givemevodka's sister sounds like she is managing despite getting adequate support - services for MH needs are also in dire shortage and those that are related to ASD need to be provided by practitioners who are also trained in it. Ideally, if better support was given at the educational stage (and earlier dx given) those MH needs may not have arisen at all.

pinkaboo absolutely. She was just seen as a pain at school and I don't think Aspergers even existed back then. She just got bullied and self-harmed and everyone dismissed it as attention-seeking .

Glittery

I just wanted to say thanks for posting that link about Linn Park in Glasgow - I had no idea, I'm appalled at how little information is passed on from authorities on these facilities.

We don't live in Glasgow, but it's near enough.

I'm currently speaking to SN education people in our council area to see how we can communicate better as parents, because apart from the 4 or 5 who are in groups with DS, we have no contact and I think so much helpful information passes everyone by. Shocking.

I don't disagree with that pink although I would like to see a move towards recognising the different causes of ASD and the different underlying etiologies. So division according to cause rather than functioning. As that will lead to appropriate treatments. I know we're not quite there yet but we're getting there and for example it is now known that ds1 is highly unlikely to share the same underlying genetics as someone with AS - and their chances of being treated biomedically differ as well. It seems a strange time - given recent findings about different genetics and pathways to autism - to lump them all together.

As far as I know, no-one is getting overwhelmed by services for their children, whether they are non-autistic, LFA or HFA. Agree with 2shoes that services need to fit need, rather than diagnosis.

Lol - agree with that too. Just been talking to a friend who had to really kick off to get anything for her son this holiday.

Suitable provision for playschemes for my lads in my town for these summer holidays have been one day. There is a special needs holiday club running, but for 10 year olds and over. So I have the choice of taking them out to places, which means that Ds2 is passive and calm and Ds1 very often is not, or staying indoors with them, where Ds1 is calm and content most of the time but Ds2 gets cabin fever.
I think they shall be spending a lot of time in the garden these next few weeks, fortunately neither are escape artists.
I do think that services should be tailored as much as possible for individuals. Ds1 copes best in quiet calm environments where he can write or draw or look at books. He will play with other children, but his understanding difficulties and social difficulties means he needs keeping an eye on or calming down frequently. Ds2 also needs a quiet environment, with closed doors or only one exit out of the place and something for him to play alone with or with an adult on a one to one basis.

SookieD No Probs! Glad its of use to you...not too many in Scotland on here!
Im in North Lanarkshire and nothing here is very well advertised.....possibly because there is nothing here right enough!
We generally only hear of things through other parents to be honest, but i imagine its like that in most places

Tutor was off sick today so I attempted to do something nice with ds (took him to visit/feed local chickens) rather than just hide in the house - he got called a retard by some little shit.

The trip out before that he got very upset because he couldn't have a pair of pink shoes, then wet himself & ran off (clarkes).

And before that was the getting chucked out of the library episode (which was a misunderstanding apparently we're perfectly welcome - doesn't feel like it though).

I still feel like people think I'm making a fuss about nothing. I am so angry all the time atm. I hate it.

back to my original op(as can't think where else to rant)
but I would be over joyed if dd disapointed me by just being a wife and a mother shame it won't ever happen

Why is everything so expensave for sn children and verry hard to get hold of and most things have to come from the usa does anybody no where you can some reasonable priced things for special needs children in the uk

My DS2 is sweet, kind, good-natured and really funny. But he doesn't always remember the right things to say at the right time. I have 2 sisters who hate him. One is very, very well off and made her will public knowledge, cutting him off when he was 8.

I told her to stick all her money up her a*se and that she should get pockets sewn into her shroud.

If I had a SEN nephew/niece I would be especially nice to her/him.

They are childless and obsessed with dogs!