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HELP AND ADVICE

74 replies

paganmummsy · 21/07/2010 16:38

i am desparately seeking help and advice for my little boy age 9. At present my little boy is in so much difficulty and at present has been diagnosed with having Attachment Disorder by CAHMS. I am most definetly not happy with this diagnoses as like many parents i have researched quite a lot on the disorder and my son just does not fit the criteria for this disorder. I shall give you a little more detail of my sons story.
During early pregnancy i had an operation to remove an ovarian cyst, a pregnancy test was not administerd so the surgeons and myself did not know i was pregnant. the birth was also very traumatic as i was in labour for an awfully long time resulting in baby opening his bowels and consuming his waste causing him distress which resulted in an emergency ceasarean section.
he was thriving as a baby, very alert, developed normally, was very quite forward with motor skills i'e walking, talking etc......It was when he was nearly 3 years old i started noticing a few things that was not quite right. He would line up his toy cars and if one was to be knocked out of place or moved from where he had put it he would become outraged resulting in headbanging episodes. He had an enjoyment of collecting stones until he found his real love which is robots, he adores them and still collects them to this day and has over 50 of them as this is all he ever asks for as presents. When he started nursery it became extremely stressful as everyday the teacher would call me to say that he was distructive in nursery and found it hard to play with the other children. He would often make friends but not keep them for long as he would only end up hurting them.
I eventually enterd him into mainstream nursery when he was 4 only to be confronted with the same problems. He had no attention span, would find it hard to engage with the rest of the children and eventually i took him out of the nursery as it became too stressful and i felt that the other parents were not happy. I had sought advice from my health visitor who then tried to offer parenting strategies of which i was already following as i am a very hands on mum and am always attentive to my childrens needs.
As he became older it got harder and harder to do normal everyday things as he would 'perform' on a normal shopping trip or even just going to visit family.
This all then prompted me to seek medical advice where i was referred to Dr Rabb at the child development clinic at heartlands hospital. It was here that my son was diagnosed with ADHD. his problems started to escalate and eventually i found myself being socailly deprived as we were never asked to family gatherings. he didn't make friends and i was starting to become extemelly worried. He would become startled at certain noises, didnt like certain noises even the tone of his little brothers voice will get to him and that still happens to this present day. To cut an extremely long story short his life has become upsettingly unsettled and this is what has bought your name to my attention.
my son has been excluded from mainstream school permanently because of his behaviour, there have been CAF meetings a CRISP in place assessments by CAHMS EDUCATIONAL PSYCH involvment and i just don't seem to be getting anywhere.
The ATTACHMENT DISORDER diagnosis has been given by CAHMS and deep down and as being his mum i feel in my heart that they havent carried out a proper assessment even though it has taken months to even get to this point and being told that they are still working with my son and they don't think that the diagnosis will change.
The only thing i feel that they can diagnose my son with this disorder is because of the birth and pregnancy.
I believe that my son may not have ATTACHMENT DISORDER because
A) I am his biological mother, and he has a stepfather that has been with us since he was a tiny baby
B)he has never been in care at all, never abused, never neglected etc.....
C) has always had a normal family enviroment
D) Has been loved and is loved and always being told he is loved and he never refuses a cuddle or family group hug with his siblings
E) he was fine up until the age of 2 going on 3 years old
BEHAVIOUR INCLUDES
1)disruptive
2) angry outbursts sometimes results in smashing things and throwing things
3) misbehaves when we take him out socially
4) unable to take a joke with anybody so i am always walking on eggshells incase a person says something that Kian don't understand
5) controlling, always has to be in the lead when playing games and cannot take loosing a game
6)cannot make friends easily or sustain friendships
7) opens and closes the fridge door a number of times to make sure that the door is properly closed
This is a few to name. Attachment Disorder just does not seem to fit the bill with him and i am finding it extremely hard to take it in, i just don't see him to have this disorder as he is a loving caring little boy and wouldn't even take part in donkey rides on a recent family holiday as he said it is cruel and the donkeys must hurt.
he now attends a key centre where he has also had a fixed term exclusion for his behaviour and is only able to attend a couple of hours in the afternoon of which is for only 2 days a week.
I feel that his case has been treated unfairly and he is no longer having a full and proper education and i just don't know what to do for the best.
I am in desperate need of help and advice for the sake of my little boy.
Thankyou for taking the time to read, i could go on forever with my sons story.

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takemesomewheresunny · 21/07/2010 16:47

welcome to mn. has anyone ever suggested autism or aspergers to you, some what you describe it does seem to tally up - lining up cars, interest in robots, difficulty in new places, short attention, need to control etc. it is a tyriad of impairments - social, communication and repetitive (or inflexible behaviour). NAS describes ASC (autistic spectrum condition) and see if what you think.

There are fab people on mn and i'm sure someone will come up with more insight.

tribunalgoer · 21/07/2010 16:48

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SanctiMoanyArse · 21/07/2010 16:48

He's the absolute spitting image rpesentation wise of my son who is ten, also would love to sahre robot collections (!) and has a dx of Asperger's that I am very, very certain about.

Shame you're not in S E Wales LOL, reckon they'd get on (and we might judging by your username- am not myself but have a degree in religions and find it very interesting- oh and I grew up near Glasto LOL).

OK I would suggest you google BIBIC; cheapest palce I know and whilst they don't dx they will let you know if you're on teh right path; they can help with the ADHD anyway so worth a shot IMO

HTH

tribunalgoer · 21/07/2010 16:50

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SanctiMoanyArse · 21/07/2010 16:52

TG is right

Where I would start though is by googling teh trioad of impairments and sitting down and very honestly going through it. I reckon it will tell you exactly where you need to go one way or the other.

tribunalgoer · 21/07/2010 16:52

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paganmummsy · 21/07/2010 16:52

When all the assessments started it was noted that he has ASD traits but as it got further down the line that idea went out of the window and the attachment disorder diagnoses wasw given, bearing in mind autism and tourettes syndrome run through the family and they havent taken this into account

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tribunalgoer · 21/07/2010 16:55

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SanctiMoanyArse · 21/07/2010 16:56

They should be taking that into account for genetics.

Do look at BIBIC.

paganmummsy · 21/07/2010 16:56

tribunalgoer

Hi, yes my other children are fine, my sons compulsions can change from week to week, as i said i could go on forever with his story, i just cant seem to get the professionals to listen to what i am trying to say, they are somewhat making me feel that i am fabricating half of his behaviours and this is why i have been keeping a diary and noting down anything i feel is relevent

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paganmummsy · 21/07/2010 16:58

SanctiMoanyArse

Hi, lol thanks for your reply, you have made me smile for the first time today after a very stressful C.A.F. meeting.

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tribunalgoer · 21/07/2010 17:00

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SanctiMoanyArse · 21/07/2010 17:00

welcome to MN

if the triad rings true email me and I amy just have a few bits on asd dx that can help

paganmummsy · 21/07/2010 17:03

tribunalgoer

my son has only just been diagnosed recently with attachment disorder and i am talking only a month ago, i have been in touch with DR PETER CONGDON and i have booked a private assessment that is costing an awful lot of money, i seriousy think that the NHS is letting some poor kids down, if i get a diagnoses of ASD from this doctor i have another battle to face by presenting CAHMS with the result

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paganmummsy · 21/07/2010 17:07

SanctiMoanyArse

does your son find change hard, recently i planned a trip to the circus but i had to remind my son all week before the event, at the circus his behaviour was impecable not a problem at all, we all decided to go for a meal, last minute decision, my son exploded in a fit of rage and couldnt cope with the change at all.

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tribunalgoer · 21/07/2010 17:10

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hanaka88 · 21/07/2010 17:12

he sounds extremely similar to my ds who is being assessed for autistic spectrum disorder and epilepsy. same story, c-section, same reason! normal development up to the age of 3 and then things started to go wrong! I fortunately got him into a good children's centre who knew me well and he is currently being assessed (aged 4)

hanaka88 · 21/07/2010 17:15

oh also I took a tribe of family members with me to the paed appointment (not my decision, couldnt stop the grandmothers lol) but it seemed to really help as everyone was saying the same thing....they couldn't really argue with 3 women and his dad lol

ReasonableDoubt · 21/07/2010 19:13

Jesus, this sort of thread makes me mad on the OP's behalf.

pagansmummy, does your son have a statement?

Are you seeing a Paediatrician (NHS one)?

Lougle · 21/07/2010 19:25

Hi pagansmummsy, you are getting great advice regarding the dx, but This link will give you information about your son's right to a full-time education. He is entitled to an education of 23.5 hours per week by law. Hope that helps.

paganmummsy · 21/07/2010 19:29

Hiya all, thankyou so much for all your replies, when my son was at mainstream school i started a parent statement, i was being thrown advice from all angles, during a CAF meeting with all envolved i bought up the fact that i was starting a parent statementing process, the school he was at just could not meet my sons needs and after reading the full report after he had been permanently excluded i found myself seething with anger, they had treated him very badly e.g locked him out of the classroom to keep him away from the other children, he was alone in the corridor, noone looking out for him, i was heart broken, the educational psych looked at me and told me that the parent statement wouldnt help as there was a CRISP in place and what was being done was all that could be done, obviously now i know that that advice was the worst advice ever and i am having to start the whole statement process over again which will begin in september

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hanaka88 · 21/07/2010 19:32

oh I feel so so bad for you and your son

ReasonableDoubt · 21/07/2010 19:32

Good luck paganmummsy.

Ring up IPSEA and get some advice. they are brilliant, but you might have to hammer the phone for a bit to get through. Look at their website, too.

If you need ANY advice regarding getting your son a statement, this is the place to find it.

You and your DS have been treated really badly. You deserve better than this.

paganmummsy · 21/07/2010 19:36

Lougle

Thankyou for the link

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paganmummsy · 21/07/2010 19:41

hanaka88

never have i felt sorry for myself as there are much worse people than me in the world, thats the way i was taught but recently i feel absolutely at a loss when i look at my little boy i can see how much dispair he feels and i feel a twisting in the pit of my tummy, i shall go on fighting for him so that he will get the proper help he needs and i will have the stigma of bad mother that is linked to this 'attachment disorder' finally lifted

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