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HELP AND ADVICE

74 replies

paganmummsy · 21/07/2010 16:38

i am desparately seeking help and advice for my little boy age 9. At present my little boy is in so much difficulty and at present has been diagnosed with having Attachment Disorder by CAHMS. I am most definetly not happy with this diagnoses as like many parents i have researched quite a lot on the disorder and my son just does not fit the criteria for this disorder. I shall give you a little more detail of my sons story.
During early pregnancy i had an operation to remove an ovarian cyst, a pregnancy test was not administerd so the surgeons and myself did not know i was pregnant. the birth was also very traumatic as i was in labour for an awfully long time resulting in baby opening his bowels and consuming his waste causing him distress which resulted in an emergency ceasarean section.
he was thriving as a baby, very alert, developed normally, was very quite forward with motor skills i'e walking, talking etc......It was when he was nearly 3 years old i started noticing a few things that was not quite right. He would line up his toy cars and if one was to be knocked out of place or moved from where he had put it he would become outraged resulting in headbanging episodes. He had an enjoyment of collecting stones until he found his real love which is robots, he adores them and still collects them to this day and has over 50 of them as this is all he ever asks for as presents. When he started nursery it became extremely stressful as everyday the teacher would call me to say that he was distructive in nursery and found it hard to play with the other children. He would often make friends but not keep them for long as he would only end up hurting them.
I eventually enterd him into mainstream nursery when he was 4 only to be confronted with the same problems. He had no attention span, would find it hard to engage with the rest of the children and eventually i took him out of the nursery as it became too stressful and i felt that the other parents were not happy. I had sought advice from my health visitor who then tried to offer parenting strategies of which i was already following as i am a very hands on mum and am always attentive to my childrens needs.
As he became older it got harder and harder to do normal everyday things as he would 'perform' on a normal shopping trip or even just going to visit family.
This all then prompted me to seek medical advice where i was referred to Dr Rabb at the child development clinic at heartlands hospital. It was here that my son was diagnosed with ADHD. his problems started to escalate and eventually i found myself being socailly deprived as we were never asked to family gatherings. he didn't make friends and i was starting to become extemelly worried. He would become startled at certain noises, didnt like certain noises even the tone of his little brothers voice will get to him and that still happens to this present day. To cut an extremely long story short his life has become upsettingly unsettled and this is what has bought your name to my attention.
my son has been excluded from mainstream school permanently because of his behaviour, there have been CAF meetings a CRISP in place assessments by CAHMS EDUCATIONAL PSYCH involvment and i just don't seem to be getting anywhere.
The ATTACHMENT DISORDER diagnosis has been given by CAHMS and deep down and as being his mum i feel in my heart that they havent carried out a proper assessment even though it has taken months to even get to this point and being told that they are still working with my son and they don't think that the diagnosis will change.
The only thing i feel that they can diagnose my son with this disorder is because of the birth and pregnancy.
I believe that my son may not have ATTACHMENT DISORDER because
A) I am his biological mother, and he has a stepfather that has been with us since he was a tiny baby
B)he has never been in care at all, never abused, never neglected etc.....
C) has always had a normal family enviroment
D) Has been loved and is loved and always being told he is loved and he never refuses a cuddle or family group hug with his siblings
E) he was fine up until the age of 2 going on 3 years old
BEHAVIOUR INCLUDES
1)disruptive
2) angry outbursts sometimes results in smashing things and throwing things
3) misbehaves when we take him out socially
4) unable to take a joke with anybody so i am always walking on eggshells incase a person says something that Kian don't understand
5) controlling, always has to be in the lead when playing games and cannot take loosing a game
6)cannot make friends easily or sustain friendships
7) opens and closes the fridge door a number of times to make sure that the door is properly closed
This is a few to name. Attachment Disorder just does not seem to fit the bill with him and i am finding it extremely hard to take it in, i just don't see him to have this disorder as he is a loving caring little boy and wouldn't even take part in donkey rides on a recent family holiday as he said it is cruel and the donkeys must hurt.
he now attends a key centre where he has also had a fixed term exclusion for his behaviour and is only able to attend a couple of hours in the afternoon of which is for only 2 days a week.
I feel that his case has been treated unfairly and he is no longer having a full and proper education and i just don't know what to do for the best.
I am in desperate need of help and advice for the sake of my little boy.
Thankyou for taking the time to read, i could go on forever with my sons story.

OP posts:
sumum · 21/07/2010 21:26

Hi paganmummsy i have posted on the thread about attachment disoder about my experiences if it's any help to you.

tribunalgoer · 21/07/2010 21:27

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paganmummsy · 21/07/2010 21:30

thanks sumum

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Lougle · 21/07/2010 21:40

This link suggests that Threads 9, 10, and 11 should be scored 4 or above before SA is requested?

paganmummsy · 21/07/2010 21:48

ok on his report it says he has a score of 5 for 9, a score of 4 for 10 and a score of 5 for 11.
I cant believe none of the professionals looking through this paperwork havent picked up on this

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ArthurPewty · 21/07/2010 21:56

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ArthurPewty · 21/07/2010 21:59

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paganmummsy · 21/07/2010 22:01

All is in hand and i am demanding the parent statement as soon as summer term is through. im just glad that somebody has enlightend me with the scoring system because i didnt have a clue now i have that evidence behind me i dont think they can refuse, if they do refuse theyll be getting a kick up the bottom by a legal team lol

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tribunalgoer · 21/07/2010 22:16

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tribunalgoer · 21/07/2010 22:16

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ArthurPewty · 21/07/2010 22:22

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Lougle · 22/07/2010 06:53

Google is my friend, TG

ArthurPewty · 22/07/2010 07:44

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SanctiMoanyArse · 22/07/2010 09:49

Am loving that [facepalm] thing LOL-can think of somewhere else to use that (may start thread)

You know, PM and Leonie, you're not actually that far from me- we were at teh hospital in Brum visintg a mate and it was about and hour and twenty.

Mayber PM when you're a bit more sorted we should meetin the middle and they can compare robots LOL

SanctiMoanyArse · 22/07/2010 09:52

Blimey, CRISP sounds scary and a very clever tactic to hide behind.

I know someone who used to practice in Brum (she's down opur way now but IO know ehr through Uni) may ask ehr about it.

Far more clever than our LEA, they just say 'Oh sorry we can't ehlp no Ed Psych will stay working for us to assess'

It's true 9they need to ask themsevles why) but only works if you can't persuade a school to get you on their private list (they all have to nominate a few kids a year and LEA have to fund ) which we've managed to do.

ArthurPewty · 22/07/2010 10:24

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SanctiMoanyArse · 22/07/2010 10:46

Ah but what I meant was it's scary how contrived it is, iyswim

Am sure it is frustrating also

ArthurPewty · 22/07/2010 12:14

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Lougle · 22/07/2010 13:08

But it's likke I say on all these threads. CRISP (or any other assessment tool) is not a bad thing if it is being used to ensure that the right children are receiving the right help at the right time. However, if CRISP (or any other assessment tool) is being used to create blanket policies, official or unofficial, and those policies are a barrier to the provision of educational support, then there is a problem.

Just like provision plans. If they actually do what they are described as (an alternative to the legal process with the same provision as would be given if they had gone through the legal process), that is great. But the problem is that they don't do that.

ArthurPewty · 22/07/2010 13:18

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ArthurPewty · 22/07/2010 13:49

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paganmummsy · 22/07/2010 17:00

SanctiMoanyArse

lol if we did meet up we may have a fight on our hands, over the robots i mean my boy wont even let his 3 year old little sister look at them never mind touch them haha would be great though to meet people going through the same as me

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ArthurPewty · 22/07/2010 17:03

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paganmummsy · 22/07/2010 17:10

SanctiMoanyArse is just fascinated by my name lol
where would this thing be? in the town centre? how about coming to one of these meetings with the education lol mums kicking ass haha

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