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Here you'll find advice from parents and teachers on special needs education.

Normal development or something more? 5yr old DD

9 replies

Fizhy · 26/07/2026 13:24

Sorry it's long! DD has only just turned 5 and has completed her first year of school. Since starting nursery shortly after turning 3, it's never been the smoothest ride. Nursery often spoke to us about her behaviour and difficulties with emotional regulation, but reassured us they felt it was a developmental lag that she'd grow out of, as she was otherwise doing well.

We were slightly hesitant about her starting school as we weren't sure she was emotionally ready, but because there were no other concerns, we were discouraged from deferring her. We hoped another year of maturity, alongside support from us and school would all help but a year on, her behaviour in school is still a concern at times.

Despite support at school and home, she continues to mainly struggle with emotional regulation. Interestingly, we don't see the same level of behaviour/dysregulation at home/outside of school, although home is obviously a very different environment with nowhere near as many demands as the classroom. It does seem to be the school setting where she struggles most.

School are monitoring her and have put support in place, which has helped to some extent, but they're unsure what to do next as most of their usual strategies/interventions don't seem to have been as effective or fit what she needs (as she has a good understanding and awareness but can't control it). She understands that her behaviour isn't acceptable and can usually explain afterwards exactly what upset her and what she should have done differently and is remorseful, but she can't apply that in the moment when she gets dysregulated. Even her teachers have said they're not sure what more can be done.

My concern is that we're using strategies that aren't effective because we're possibly asking her to do something she may not be able to do, and in the process we're making her feel bad about behaviours she genuinely doesn't seem able to control and knows are wrong. She's previously said things like"my brain is bad" after a particularly bad day, which was really upsetting.

The main issues highlighted are:
-Very quick to become frustrated or upset. Especially if there's any perceived rejection from her friends it's a huge deal for her. She can apparently get easily frustrated and upset over 'silly' comments which others easily brush off.

-Can lash out physically at other children when frustrated (this has improved/reduced significantly over the year but still happens occasionally). This doesn't tend to happen with the children she's good friends with.

-Impulsive at times, particularly with peers(e.g. poking the child next to her) - don't think it's done maliciously but more so without thinking

-Needs support sometimes to stay on task (which I think is age-appropriate on its own, but maybe less so alongside the other difficulties??).

-Finds any perceived criticism or needing help very difficult. For example, if she's gently corrected during an activity, she will usually say she's "no good at it" and refuse to continue or will get really frustrated with herself if she can't do something straight away and then starts with the negative comments about herself.

-Listening and following instructions can be a bit iffy at times but again I think that's normal for this age.

School remain unsure and sometimes seem not too concerned and say it's still within the realms or normal at this stage and they hope it's developmental and will just stop with support. Other times they seem more concerned and say they are continuing to monitor her and log behaviours (which obviously suggests it's less normal?). She has periods where things improve, but it tends to fluctuate. The fact we don't see all these behaviours to the same extent outside of school makes it harder to know whether this is within the range of typical development or whether there's something else going on.

On the flip side she's very confident, very sociable, loves to learn and seems to have a good circle of friends despite some of her challenges socially in school. At home we've never really had to worry about her when she's been playing with our friends kids, out at soft plays or parks etc she's always desperate to seek out a new friend and we've never seen her hit out in frustration in these situations. Emotionally she can be a bit wobbly at times and we can see some big emotions occasionally but we've never felt it's anything extreme or beyond what you'd expect from a 4/5yr old and what we see from her peers/friends kids and we can always quickly calm and regulate her.

School haven't made any referrals yet as they don't think it's at that stage but we're worried that we're kind of in the same position as we were 12 months ago and we're all hoping that it is developmental and something will just click for her soon. My concern is whether we're missing something bigger in the meantime and not supporting her in the best way but maybe it's too soon to know?

Any thoughts? Should we just keep on waiting and seeing what happens and hope it becomes clearer either way as time goes on? Or should we be pushing for something else?? School seem at a loss to know what else to do/suggest (which worries me a bit when she's only 5) but don't feel she needs a referral yet.

OP posts:
inthequietofdawn · 26/07/2026 14:28

I think the school’s approach to waiting before referring for assessment is the wrong way to go.

What support has the school already tried? If they need further advice on how to support DD, have they approached outside agencies? If your LA still has them, have they approached the specialist teaching service? Has DD had an ed psych assessment? What about OT and SALT (SALT is about far more than the physical ability to speak) assessments? Have they requested an EHCNA?

It isn’t uncommon for DC to have good understanding and awareness in theory but not be able to put that into practice.

Have a look at rejection sensitive dysphoria.

Fizhy · 26/07/2026 15:40

Thanks for the response @inthequietofdawn

support they have tried is social stories, managing the specific times of the day differently where they identified she was finding it trickier, moving her away from others at carpet time and keeping her closer to adults so they can intervene. She also spends quite a lot of time in the reflection area...

they haven't approached any outside agencies yet. At parents evening a few months ago they said there wasn't any major red flags and they felt they had seen big improvements since sept but more recently they have said her behaviours been a bit trickier again but think it's probably down to end of term/lots of talk about transition etc. so it's not very consistent - sometimes she seems to be doing ok and other times not so much. She had a really wobbly week a few weeks ago and they said the senco had asked them to monitor her more closely for 6 weeks. We hadn't really heard anything during this time so we assumed she was doing ok as she seemed pretty settled and happy coming out of school but when I checked in just to see what the outcome had been as we felt she'd had quite a good stint recently they said this wasn't the case and they'd seen quite a lot of tricky behaviour again which came as a bit of a shock. Her school report said she is meeting expectation in all areas including emotional regulation which also surprised me given some of the concerns so I still can't quite work out whether we need to be concerned or not or if we're making it a bigger deal than it is?! So no they haven't suggested any kind of further assessment from any agencies at all at this stage.

I'll definitely take a look into rejection sensitivity dysphoria as it's something she really does struggle with but I think this is often misunderstood and she's perceived as over reacting or being overly sensitive. I also worry that other parents must think that she's just the 'naughty kid' that doesn't know how to behave. Whereas my gut feeling is there's more to it. Her previous nursery teacher commented once that when you see these kind of behaviours you look at the parents and it explains what they're seeing but they didn't get that impression with us.... but it still makes me think your parenting is questioned 😔

OP posts:
inthequietofdawn · 26/07/2026 16:34

So the school hasn’t helped either anything like emotional literacy work or sensory circuits? Do they have anyone who can do things like Lego therapy or drawing and talking therapy? Do they run a nurture group? Do they have a visual timetable as standard? Have they tried checklists (with photographs depending on DD’s level)? Have they tried any sensory equipment/toys? For teaching on the carpet and work at tables have they looked at placement within the classroom?

What times of the day are trickier and what different ways of managing have they tried?

If the school should have asked for outside input if they don’t know how to support DD.

You can request an EHCNA yourself. On their website, IPSEA has a model letter you can use.

Going forward, I would follow up all verbal conversations with emails so you have a paper trail.

Fizhy · 26/07/2026 17:08

No I'm not aware they've done anything like that with her. I don't know about nurture groups - they mentioned enrolling her in the Elsa program but they didn't think it was what she needed so decided against it. I think because school are leaning towards it being developmental they are managing it this way. There's been times she's been sent to the head teacher for a chat as a way of trying to address it. When I asked my DD what they said to her she said they told her she needed to do better. Which I'm not sure is particularly helpful for a child they know struggles with emotional regulation. There was probably more to that conversation but that's what DD took from it 😔 and the teacher said that DD wasn't bothered/didn't care which makes me think they do think it's more behavioural and they are trying their usual behavioural management strategies but they're ineffective.

I have wondered about sensory toys - especially at carpet time so she doesn't start poking and bothering other children but I worry it will just be seen as me trying to pander to her in the absence of any formal assessment/recommendations . She does talk about other children having fidget toys so I think the assumption would be she only wants these because other children have them. Maybe I just need to grow thicker skin but I feel a little clueless and being mostly led by school.

the trickier times of day are what they describe as 'busier' times and the transition times so getting ready for the end of the day/break times. So I think the workaround has been they send her to do these tasks like getting coats and going to the toilet first so she's not caught up in the chaos as much.

To be honest most communication has been via the school app - the teacher only really talks to me in person when there's been an incident that they need to tell me about.

OP posts:
inthequietofdawn · 26/07/2026 18:06

Unfortunately, you will need to be proactive. Don’t rely on the school leading. And, yes, you need a thick skin.

Support in school is based on needs, not diagnosis. The school should not wait until DD has a diagnosis (if she does indeed have a diagnosable condition).

The school doesn’t sound brilliant. How helpful of them to give DD the message that she just needs to do better Hmm.

DD definitely needs emotional literacy support.

If DD finds home time difficult, can you pick her up 5/10 mins early from a quieter entrance. Does DD struggle with drop off too? For lunchtime, can DD go 5 mins early &/or eat somewhere quieter? For toilets, do they have a disabled toilet DD can use?

Fizhy · 26/07/2026 18:55

Ok that's all been really helpful and reassured me that I'm not making a mountain out of a molehill.

The school I think have the same challenges as a lot of schools now unfortunately. They've taken away pretty much all of their support staff so DD's foundation unit had mostly 2 teachers to 40 odd kids which isn't ideal when it comes to implementing support and managing so many children's differing needs so I think there's a bit of firefighting going on despite the teachers best intentions and efforts. Her teacher is genuinely lovely but seems at a loss and I'm guessing doesn't have the support around her as much as she should.

DD has never struggled at drop off time. She drags her heels a bit about going to school sometimes but she's always happy to go in without any issues at all. She genuinely loves learning and is so enthusiastic about stuff they have learnt and my worry is that if this continues eventually she won't enjoy school anymore and we will see issues with getting her there. She can be less keen to do the 'work' side of things like writing as she gets frustrated when she can't do it but stuff she's pretty good at she really enjoys (like reading). We've already been told that she's made good progress this year but she will need to work hard next year to maintain this - which already worries me that there is going to be an emphasis on progress rather than her being happy and enjoying learning when she's only just turned 5 (which I get isn't necessarily the teachers fault it's the pressure they're under re performance/progress/the curriculum) and this is just going to escalate things further if she feels she's failing/not achieving.

She doesn't so much struggle with home time/coming out - it's more the time leading up to this where they are getting all their stuff together inside. I think the issue with her going for lunch early or having a quieter space will be that they don't have the staff to support this. But it's definitely things I'll keep on my radar for Sept to raise.

I'll also look at the self referral info too - really useful as I didn't know you could do this.

OP posts:
inthequietofdawn · 26/07/2026 19:03

If the school needs more funding in order to meet DD’ needs they should have applied for high needs top up funding and requested an EHCNA.

I would have a think about the writing issues. For example, is it the physical act of writing? How are DD’s gross and fine motor skills? Is it the act of getting it down on paper at the same time as thinking? If so, how is DD’s work when she dictates? Is it that some writing is open ended and DD either doesn’t know where to start or has so much she wants to say her thoughts run away with her before she has the opportunity to write it all down.

Has DD tried ear defenders? Some who find the environment too busy find sunglasses help too.

In some areas, you can self refer to OT. Not all ICBs commission sensory OT now, but either way I think an OT refer would be a good idea. If you request an EHCNA and the LA agree to assess, an OT assessment can be part of the needs assessment.

Some areas run drop in sessions for SALT and/or OT. If your area does, it is worth looking at. Similarly, some areas have limited parental open access to a specialist teaching service. If your area runs drop in sessions for this or a phone line, it is worth contacting them.

Fizhy · 26/07/2026 21:17

No issues with fine or gross motor skills as far as I'm aware. The issue is more that she gets frustrated if she thinks she can't do it. For example they're expected to write in the lines, use capital letters and finger spaces in the correct places and if she starts to struggle then this is where I think she then needs more support to stay on task or she'll start doing something silly like doodling on the table or in her workbook. Same with if she gets her letters the wrong way - it's typical at this age but she can get frustrated with herself. She doesn't have the resilience to keep trying if she sees it as a 'failure'. But I also think expectations are incredibly high on 4yr olds who are expected to develop these skills when they are still so little and it's no wonder some of the younger ones like DD can struggle.

We haven't tried ear defenders yet. It's never been suggested that she finds loud noise or environments overwhelming but I guess it's a possibility. We've certainly never felt she's needed them outside of school. But I'll keep it in mind as a suggestion for Sept.

Have had a quick look at what we can self refer to in our area and unfortunately it seems quite limited. The EHCNA seems to be the pathway to any support services/assessments so maybe this is the route we need to take. School have said the next step would be a referral to early help services but I don't know if that's more support for DD rather than support in school? I'd need to look into that more.

OP posts:
inthequietofdawn · 26/07/2026 21:22

I suggested ear defenders because they can sometimes help DC cope with the busy times, such as getting ready for home-time, in schools even when DC don’t seem to have obvious noise sensitivity at other times.

By all means accept the Early Help referral, but I would do that as well as an EHCNA request. You don’t need to do the former before the latter.

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