I can't be the only one.....

[Don40]

My son has started y1 at school. From a young age he has had issues, he is now on the SEN register and has a EHCP in place. At home he has his moments but at school he acts out. He has a language delay and general development delay. He used to see a OT who I asked if he was autistic, he reply was in her experience she would say no as he is very aware and she couldn't see it. She is the one who said he had global development delay. Anyway his language has got much better and so has his understanding he struggles with his emotional and social side. Sorry just trying to give some background so basically he likes to bang his hands on the floor either when cross or happy or excited this has evolved from banging his head. We think that was from frustration not having the language. What i wanna know is does anyone have a 5/6 year old that has been through similar? He tries to control every situation and whan he does get it instantly or his own way he gets really cross. Today this lead to throwing a chair at school and hitting 4 teachers. He isn't like this at home not to that degree.
Please comment if yiu have similar issues or advice as right now I feel like the only person in the world who has a child with these issues. Please ask any questions.
Thank you

What support is currently in DS’s EHCP and is it currently being provided like it should be? It sounds like you need an early review of DS’s EHCP. DS needs more support, including from OT who it sounds like he doesn’t see anymore?

Is DS under SALT? Is he under paediatrics?

I have been fighting for him since he was 1 years old and I have nit been listened too. Pediatrician won't see him.as they say he is healthy. I not heard of SALT but have primary behaviour meeting next week. Yes OT no longer see him along with no speech therapy.

You need to request an early review of the EHCP because it needs amending to include more support, including but not limited to therapies such as OT and SALT. On their website, ISPEA has a model letter you can use. You may have to appeal next time you have the right of appeal.

It would help you to read IPSEA and SOSSEN’s websites to understand EHCPs better.

SALT is Speech and Language Therapy.

Go back to the GP and request a referral to either a community paed or CAMHS (whoever diagnoses GDD in your area). Although an OT may be part of the MDT who diagnose GDD, they cannot diagnose it alone. It isn’t about DS being healthy or not.

I have done referrals and all refused. Camhs also refused to see him. He has salt at school so I'm told. My post was more about if people had children with similar issues and how they get child to listen and understand. It's so hard

Your OP said “or advice”. My advice is the EHCP needs improving (including therapies such as OT - and maybe SALT because although your last post said DS gets it in school your pp said no speech therapy) so you should request an early review. If whoever diagnoses GDD in your area has refused a referral you should formally complain (and if still unresolved depending on the specifics complain to PHSO). You can also request a referral to an out of area service.

Thank you for your advice and help. Much appreciated.