I know it is a long shot.
A few months ago I started a thread trying to find other MNers who might have DC who have the same rare syndrome as my DS. I was watching the thread but unfortunately missed it when 3 weeks ago someone replied. I immediately replied back but have had no joy yet. I can't click on the posters name (not sure why you can click on some peoples names and not others).
I feel really bad about it. Anyone got any suggestions? Thanks.