Would anyone be interested in a Autoimmune Disease thread in Health?

[VioletLips]

I've asked MN Admin & they've asked that a post a thread on Site Stuff to guage interest.

On a recent thread it appears that they were quite a few of us who have IBD, (Crohn's disease or Ulceritive Colitis) and other conditions either associated with this disease or other AI disorders.

If you'd be interested in this as a new topic under Health please post on here. The more responses this thread gets the more chance of it happening.

Would be good to have a suppprt thread out there.

Cooeee, another Hashie here. Would be great to hold hands through the (brain) fog with people

Yes please!

RA and Psoriatic Arthritis here

Yes please - bechets x

Pernicious anaemia here too - yes would like a place I can moan 😄

Hello! Crohn's here - diagnosed 20 years ago this year. I've just started on Humira injections after quite a bad flare up. Really hoping they work as the next step is surgery. An autoimmune moaning/venting thread is a great idea!

Yes please! Not a sufferer myself but DH has sarcoidosis so any support would be gratefully received.

Vitiligo here - not as debilitating as some of the AI conditions you list ...

I had a tiny PA victory last week actually, I was getting my b12 every 10 weeks, but asked for an increase and GP agreed to 8 weeks without question (and the nurse had a slit ten minutes later ). My sister also has PA and her docs are hardline about the 12 week rule.

A SLOT, the nurse had a slot!

Yes, very interested. Hyperthyroidism (Graves disease)

Another pernicious anaemia here (I used to get my jabs monthly tanya but bastard gps put them back down to 3 monthly - I self-inject now) plus arthritis.

Yes please!

@bookworm i don't know if this is the place for discussion about meds etc yet or just a place to express interest but if you want to chat about humira for IBD feel free to PM me

Yes please :)

I'm interested, I'm busy racking up more AI stuff by the week it feels like. Type 1 diabetes and MS.

I'm waiting on Biologics, can't have Aza or 6mp

MS here too. Would be nice to have a thread or area to dip into wit hour having to go searching when I am too bollocksed to look

*without

DP has an aggressive form of RA - newly diagnosed. Would love somewhere to come and vent/worry/ask questions

🙋🏻 MSer here :)

Why not aza @violetlips? I have taken that for years but it stopped working which was a shame. Now i take it but along with humira.

Projectile vomiting, felt like food poisoning, can't tolerate either of them

70s, I might be able to have a guess at that!
Yes please, OP.
I have a DC in remission from a very nasty AI condition, and I have inflammatory arthritis (that's as far as I have got with a diagnosis ATM), associated with skin problems - seborrheic dermatitis / psoriasis.
So, a big yes from me.

Oh no! I had absolutely awful nausea with both aza and humira but after about 6 months for aza and i cant remember how many for humira it stopped and I have no side effects for either
Hopefully biologics work for you. Which are they thinking of trying ?