a chance for the SN community to tell you how it really is and to tell you the horrid stuff they have to deal with

[2shoes]

all the time..
after the horror of the other thread, I think it would be good for the sn community on mn to tell their stories, when they have been harassed/assaulted/ and abused by the nt world.
night help to put a couple of minor incidents that someone in the nt world has had to put up with for a very short space of time.

so I will start ....
we were subjected ot haye crime for 5 years....why because my ds fell out with them when they called my dd a spaz.
we can't go out without the staring...small children blocking out way in the shop, whilst mummy/daddy does nothing, just so their child can stare at dd, who is shock horror in a wheelchair.
my son was bullied at school by nt kids who took delight in calling dd a spaz.

mie are minor compared with most.

thanks Dotty

devientenigma Tue 17-Apr-12 13:36:01
you know those sn kids who make you fearful...........thats mine!

yep mine too and yet she is lovely. It's just everything you dreaded has happened iykwim

she has sld, severe scoliosis, chronic epilepsy, challenging behaviour, asd, and allsort of other crap. We don't know the cause, all the tests - of which there have been many- have been clear/normal and her brain is normal too, just slightly smaller

Mines the same but he's medicated now has to be

We have also lost friends. IME, adults are often worse than the children.
We had parents from dd's old school spreading malicious gossip and a dinner lady informing a family member that dd was 'weird'

I have lost count of the amount of times 'professionals' have told me I am over anxious etc etc etc.

I feel like I spend my life fire-fighting.

So many of these stories are devastating and I despair about the kind of world we live in. I know we all have some positive experiences, too, though-I think that's what helps to keep us going.

sibling

we've lost friends, been called 'selfish' for turning down invites to go out, despite offering to socialise at our home

lol Sibling, the only thing that keeps me going are my online facebook friends and sims...............sad isn't it.

we have no life whatsoever, sn rule in this house!! He's also a kid who you are lucky if you get him out, so isolated to the home most days and no respite whilst he's at school, why....................because he doesn't go!!

Devien hope your ok.

Normal is over rated anyways

Lance- not quite, have been accepted at assessment clinic for assessment but it is something that I have known for ages- and my Mum, and her dad....... I did the acceptance bit a while back (just after starting my MA), just formalising now.

hey, I'm a Waitrose shopping, Boden (well the girls are!) wearing Mark Warner holidaying type

everyone is just a blink away from severe disability. it is what makes people uncomfortable sometimes, I think - the fact that it is an invisible line, and easy to cross.

awkwardmary thank you for your post . you are right, anyone can feel unsure, but I think it was very big of you to come on this htread (where a lot of the peole discussing the issue with you yesterday are posting) and say what you did so publicly.

I will be Lisa, you know me, things get me down after so long, then I bounce back up............just still not bounced atm. DS still not in school and home tutor not going well at all, pead, psychiatrist and psycologist have withdrawn. Had a really bad stay at respite last time. DS still the same but a bit older and bigger. How's you?

'you know those sn kids who make you fearful...'

He's lovely, but incredibly demanding. if you had enough respite and schooling it would make such a difference to you all.

Nobody can cope with a demanding caring role whilst battling every service that there is AND fearing for their income AND having no sleep, plus the other stuff you have going on. Nobody at all.

Well there is plenty of very famous people with disabled children,

other stuff Peachy is that like sims on facbook.....................just kidding x

redcarnations that is sad.

I remember having lunch with DH in Wetherspoons maybe a year ago; a family with an older child who was disabled and making noises / dribbling came in and people upped and left half eaten meals.

I can only think how sad their own lives must be if the entertainement of watching otehr people is the best they can get.

This thread has made me think a bit. My ds2 has SN.

Reading this, I am not sure whether to be worried about his future in society or to take heart from the fact that there are so many strong and supportive people out there.

I have encountered a few rude and ignorant people, but I have been lucky really, some of you have awful tales to tell.

I am sorry that I have have to stop reading this post after 2 pages.

I grew up in the 1970's with my DB, who has severe disabilities. We had the most wonderful, loving family, an a really fantastic childhood. But, this was the 70's and attitudes to the disabled were pretty bad then.

I thought things had changed.

Seems I was wrong

All the kind of things mentioned above - friends becoming distant (although some have been stars); abuse in the street, staring, people feeling that it is their divine right to tell you how to parent/make crass or downright abusive comments yada yada yada

I set them straight whenever possible in the hope that they will learn to keep their mouths shut and their inappropriate comments to themselves, but I know deep down that probably the only thing that would change them was being in the same boat themselves. silverfrog you are so right - everyone is a blink away from disability. I think that's what scares people. Still doesn't give them the right to comment.

Lost many many friends BUT have gained so many wonderful understanding friends too.

it's just a shame all the wonderful understanding ones live too far away.......................too much bitchiness and top trumps locally or is that cos they don't like DS and his needs.

We need to start treating abuse targeted at those with disabilities as seriously as racist abuse. It seems like this is an area where we're not progressing as a society.

My first move would be dropping Ricky Gervais down a deep well.

it is happening though Narked, well locally it is.

Not really sure if this is relevant, but my DM had CP. She was probably mild-moderate I suppose, but went on to have a productive,active life, married, teacher, two children, looked after her own (NT) mother till 94, along with us at the time.

I know this probably does not compare to situations some posters find selves in, but just wanted to say life may not be all bad as DCs grow up.

She had her fair share of abuse, but generally able to cope altho I know sometimes got her down.

I hope it has helped me be a bit more aware, in a 'how can I help if needed' sort of way, not ( I do hope) in an intrusive way.

As a family, we often just knew what she needed, arm for walking, help putting cup down, needle to be threaded etc thru experience. Also sometimes a bit of patience to allow her to put thoughts into words which could be understood, especially when excited or cross!

Her in-laws did not want my DF to marry her because of the CP, but thankfully both DM and DF ignored them and their pseudo Christian ways!