Does anyone else have Lichen Sclerosus?

[JuneBop]

Recently been diagnosed with lichen sclerosus after about 3 years of painful sex and being constantly misdiagnosed with thrush.
I've been given a steroid cream to use for 2 weeks and have been told this should almost get rid of it. I've been using it for 5 days now and feel no difference.
Just wondering if anyone else has been in the same boat?
I'm only 27 so really don't want my sex life to be over but if this doesn't get any better I can't imagine having sex again.

I do. But under control. Some steroid cream and dermol wash and lotion. Luckily pretty speedy diagnosis.

I have it too, I was diagnosed in December. I was given a steroid cream and told to use it twice a day for 3 weeks, it did help but didn't clear it up for another few weeks. I was then told to use it as and when but I'm finding that I can't go more that a week or so without using it, as soon as I stop using it I get sore again. There are some very good support groups on facebook, if you do a search you should be able to find them and join, there is lots of people on there to answer any questions you have, I have learnt a lot from those groups.