Blue and all you other beautiful MNers, why did I not ask for your support and help before..
Here's some answers to things...
I picked my husband and DS up from airport the night before my op and saw my son's eye not quite right (at all so how did he a) not mention it and b) not do anything) and because of my distress, my husband took him to the walk-in centre who said it was conjunctivitis - utter rubbish. But in any case, I had no option but to have my op as I'd been misdiagnosed for so many years and the op had been brought forward to the problems I had.
When the boys came to see me on the Fri (2 days after op) my son's eye had stopped working and he looked terrible...so I discharged myself and took him to A&E with my husband saying he'd take me home and he'd take him to A&E - yeah right! As if!
The issue is I've always been spot-on with my son and his health. I do not over-react although it could be seen as such as I've pushed and pushed re: allergic reaction to foods and a bad chest - which turned out to be a serious mould allergy - which my husband dismissed as things kids in the UK just get.
His parents also kept saying 'when GC is old enough we'll treat him to McDonalds' and 'oh, I thought he was allergic to peanuts'.....when I have repeatedly told them he is allergic to ALL nuts, sesame seeds (McDs?????) and eggs as well as mould??? Do they just not listen to me or what?
Yes, some of you have said the feelings I have would be totally normal considering the past few months, and there is a level of guilt that I still went and had my op whilst I had doubt (serious doubts) over my DS's eye which then got considerably worse in those few days I was in hospital. He could not come and see me as I was recovering on a gynae ward and so that was not acceptable for him to come see me.
I feel guilt over my husband having to do so much for our DS whilst I was so sick before my operation, but then isn't that we sign up for (in sickness (and lots of it) and in health)?
I also know the MIL has looked after our DS and been heard to say..'never mind, your mummy can't cope so we have to look after you' before I had my operation. Urm no, lady..it was because at least if you looked after him for one or two days each week, we didn't have to see you at weekends.
She also came up to me at our wedding (which I paid for along with my parents) and his parents had said they'd put cash behind the bar - but came up to me, not him, and said they would no put the cash behind the bar because it was £4.20 for a bottle of Stella?? Yes, it's 5 star hotel and I've just paid £120 for each of his bl**dy family to eat a lavish meal and supposedly enjoy our special day...not only that but DH's father wouldn't even put £1 in a sweepstake which raises money for my uncle's parish in South America to help pay for vaccinations for children in the village...you know why..he said 'you cannot give money to him (my uncle who is a priest and had just married us) as for all we know he pockets the cash and is probably driving a Rolls..' and he said this to one of my bridesmaids who is not one to stir things up at all.
Urgh..I just hurt to the core - I hurt because I feel so let down my husband. Cannot write DH anymore as the D does not apply.
In reply to people who suggested counselling, well, we've been fortunate enough to have a therapist the hospital due to our son's cancer - and he attended the first few but as soon as the therapist suggested he write his parents a letter explaining his issues and our issues with them, he was all 'yes, yes, I will write to them etc etc' and then after that, no letter and husband never attended again, citing that I should go alone as I am struggling more than he is with my son's diagnosis.
And yes, I am. I think about whether his dianosis would have been better if I'd not had my op, but then I would be too sick to look after him. I struggle as I don't know if this is his last Xmas and his last birthday in January as he only has a 50% chance of living another 5 years. My husband says I am being too emotional and pessimistic and shouldn't dwell on things. NOT dwell????? I am being realistic surely! I cannot get my head in a place where everything is lovely and normal, because it's not.
Maybe I am the one who has let my son down. I should have taken him to the hospital as soon as I picked them up at the airport. I should have never allowed my husband to talk me into not having it out with his parents.
Resentment..horrid place to be and feel so weak to do anything about anything.