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Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

What's wrong with my husband?

210 replies

Redlegged · 27/08/2023 19:33

I really don't know which section to post this but I'm pulling my hair out and doctors are useless so I'm hoping someone will say "oh I know what that is..."

My husband has a history of mental health problems, but not since we met. He can't handle stress at all well and gets overloaded quite easily.

He had some kind of nervous breakdown a couple of years ago which seemed a bit abnormal to me. He got paranoia and behaved in some strange ways. I would say he seemed depressed but it seemed like more than that. It was some sort of episode.

He saw the GP at the time for numerous physical complaints - stomach aches and so on, but the GP found nothing. The GP said he felt he needed mental healthcare but DH refused (he's VERY anti this due to traumatic past experience as a teen).

This episode where he was very extreme seemed to go on for 3 months, then he was listless for months.

After that he got better but we had to change our life significantly to remove all stress. Then he got covid. Not sure if that's relevant but it might be so I'm putting it in.

Then about six after the episode he got joint pain and fatigue. That's escalated and escalated to a point where we don't do anything or go anywhere. He wakes up in the night in pain, he wakes up in the morning in pain, he is always exhausted.

He gets an extremely swollen abdomen. He's developed allergies to foods and pollen. Painkillers do nothing. It's worst in the morning. Stress exacerbates it.

Now he's developed a heart problem. He's only 41 and was a keen cyclist with exceptional fitness and we eat like vegans! His heart has always been fine.

We've seen doctors and had every test and everything comes back negative. They're not really helping us, we just get passed from pillar to post.

Does anyone have any ideas?

I'm at my wits end. He doesn't even have energy to speak to me.

OP posts:
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featherlampshade · 31/08/2023 01:57

Sounds so similar to my Mum, specifically with the joint pain,bloating and abdo pains, and she was diagnosed with Haemachromatosis. She had to have a specific genetic test at the GP to be diagnosed and now has to have pints of blood taken at a time to relieve symptoms. Might be worth looking in to

mightymam · 31/08/2023 02:51

Under active thyroid? I have it and feel like your husband does when I miss my medication or am under medicated.

RantyAnty · 31/08/2023 02:59

Have they ruled out Lupus?

User452023 · 31/08/2023 04:13

Years ago, (in 1999),I had extreme tiredness and brain fog after having a contraceptive injection.

My gp recommended the contraceptive injection as an alternative to the contraceptive pill. ( after taking it, I had a blood clot in one of my legs)

After I had my contraceptive injection, about a week and a half later, I gradually began to feel very tired. The tiredness was so bad that I was unable to sit up. If I was travelling by car it had to be a short journey, and I had to sit at the back of the car and lie down.

It was very difficult because I had 2 young children to look after so my partner took on the main responsibilities of caring for them and running the home.

I had extreme brain fog. It was like having a 'mental tiredness' that made it exhausting to even think about anything.

I had no energy to get up and do things and would have to mentally prepare myself to muster up the strength to even get to the bathroom.

At the time, I remember thinking to myself that this must be what having M.E feels like. What I was feeling was definitely real and not in my head.

(M.E was relatively new at the time and it was often being said that these symptoms were not real and in people's minds)

When I felt better, I mentioned my symptoms to the nurse at the clinic and was told it must be a 'coincidence', and not related to the injection or 'maybe I had a virus. I didn't think so.

The only coincidence at the time was that my symptoms started after I had my contraceptive injection.

I didn't have the injection again after that. Gradually my symptoms went away over the course of a few months and I got my energy back.

User452023 · 31/08/2023 04:22

Apparently M.E wasn't a new thing but after an increase in people having symptoms, and nothing showing up in tests which could explain the symptoms, there was a lot of talk about whether the condition was real.

Redlegged · 04/09/2023 17:58

Update:

He got a GP appointment. I couldn't be there. Sent him with a list of all these things to test, as well as asking the GP to put him on an exploratory course of steroids.

He came out an hour later.

GP ordered NONE of the tests I asked for, not lyme, not anything and is just repeating for the fourth time the same fucking inflammatory blood tests we have done three times already.

Also told him he might have had a heart attack and gave him an angina spray and said he'd see the cardiologist within two weeks.

I just feel like crying. They're just doing the same tests over and over and we know the results.

If we pay for private rheumatology will we get this same behaviour? I honestly feel just so upset and completely sick of this.

OP posts:
Riverlee · 04/09/2023 18:08

Can you see a different gp? Or contact the practice manager and complain.

LizzieSiddal · 04/09/2023 18:11

Agree with phoning the surgery and asking to urgently speak to the manager and complaining. He does not need the same test for the fourth time, he needs new tests.

Redlegged · 04/09/2023 18:23

It is a different GP every time. They all just repeat the same process. I've complained, I've cried, I've begged...they just keep sending us round in circles.

And they didn't even check his blood pressure which I was really worried about.

I dont understand giving him a spray for chest pain either. Surely if they're suspecting he might be having a fucking heart attack he'd go immediately to A&E?

Honestly I am not sure if it's me. Is this normal?

OP posts:
tt9 · 04/09/2023 18:28

no the private rheumatologist will take this seriously. since you are in London, I can reccommend some people - although I trained North of the river... so they will be UCL/Royal Free based but you can always be referred after the initial appointment

I also have a rheumatological condition so bn through this process

LocomMotive · 04/09/2023 19:05

Also told him he might have had a heart attack and gave him an angina spray and said he'd see the cardiologist within two weeks.

This part is good op, make sure that appointment comes through.

LocomMotive · 04/09/2023 19:10

Op have there been any heart problems in his family ?

OhComeOnFFS · 04/09/2023 19:19

This must be so frustrating and upsetting for you. I do hope you get some answers - if you can afford to get a private doctor, I would do that.

You can test blood pressure at home, though, if you're worried. Amazon sells the monitors quite cheaply.

mumofadults · 04/09/2023 19:21

Hi If you can get to London, and can afford some private treatment go to Dr John Moran at Holistic health. he is a fully qualified medical doctor with a very busy practice in Holistic medicine. I went to him in 2008, verging on a nervous breakdown, and extremely ill. He did not stop until he found what was wrong with me. He is also extremely well connected to other specialists, and co ordinated with endocrinologists getting good treatment. Go for it if you can. http://www.holisticmedical.co.uk/

Holistic Medical Clinic | Traditional & Complimentary Medicine

At the Holistic Medical Clinic we believe in maintaining "Wellness, Vitality and Virility", combining the best of traditional and complimentary medicine.

http://www.holisticmedical.co.uk

HelpNeededBeforeIHaveABreakdown · 04/09/2023 19:25

Did he have B12 tested? And do you avoid barley and rye as well as wheat for gluten free diet?

Hope you get some answers soon.

LocomMotive · 04/09/2023 19:32

Obviously seeing a cardiologist in two weeks, not about the heart attack.

x

Redlegged · 04/09/2023 19:32

Thank you all.

No family heart problems. His heart was I'm brilliant shape all his life until now.

He doesn't eat gluten. He's been on an anti inflammatory diet for ages.

I've phoned a private GP for a video appointment tonight just so I can get a second opinion.

Then I think we need to just go private. I'd love to do the holistic thing for sure but first need to know they're not missing a disease diagnosis.

OP posts:
Wolflover · 04/09/2023 20:56

Look into Lyme disease if it exists in your area. I have it and it can cause all of these symptoms. Unfortunately, it is difficult to test for.

LocomMotive · 04/09/2023 22:03

No family heart problems. His heart was I'm brilliant shape all his life until now.

It doesn't always work like this, there could have been an undetected heart problem or it could have worsened.

S0upertrooper · 04/09/2023 22:40

Undifferentiated Connective Tissue Disease? Not widely recognised in the UK. An umbrella term for 'almost but not quite' RA/lupus/and other inflammatory diseases. If it is this you'll need to see a good rheumatologist.

Automaticforthepeople · 05/09/2023 08:30

How massively frustrating for you OP, so sorry to hear this. It just doesn’t make any sense to order the same tests yet again.

Dr Kharrazian is a functional medicine practitioner and a clinical research scientist. He deals with autoimmune, neurological, and unidentified chronic diseases using non-pharmaceutical treatment.

I haven’t seen him personally but he seems very knowledgeable with lots of info on his website and YouTube. He also has a list of trained practitioners if you choose to go down this route:

https://kharrazianinstitute.com/ki-practitioner-locator/

KI Practitioner Locator - Kharrazian Institute

https://kharrazianinstitute.com/ki-practitioner-locator

porridgeisbae · 06/09/2023 00:59

Apparently M.E wasn't a new thing but after an increase in people having symptoms, and nothing showing up in tests which could explain the symptoms, there was a lot of talk about whether the condition was real.

@User452023 Chronic Fatigue Syndrome (there's no encephalitis involved so the term was changed to reflect that) used to be called neurasthenia.

porridgeisbae · 06/09/2023 01:00

Someone can go from expressing their mental ill health in one way to it coming out in another way in the course of their life.

Either way, I hope he feels better soon OP x

OhcantthInkofaname · 06/09/2023 01:30

What "heart issue" has he developed? That is an extremely vague comment.

Redlegged · 06/09/2023 12:29

I did give details earlier. He has severe intermittent chest pain and an ECG showed inverted T Waves. He has an emergency cardiology referral.

OP posts: