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Relationships

Mumsnet has not checked the qualifications of anyone posting here. If you need help urgently or expert advice, please see our domestic violence webguide and/or relationships webguide. Many Mumsnetters experiencing domestic abuse have found this thread helpful: Listen up, everybody

Married to someone with Asperger's? Support group here!

941 replies

picklemepopcorn · 03/08/2018 10:04

This thread is for partners seeking to understand the dynamics of their relationship with someone with ASD. It is a support thread, and a safe space to have a bit of a rant. Avoid sweeping generalisations if possible, try and keep it specific to you and your partner.
(ASD partners welcome to lurk or pop in, but please don't argue with other posters and tell them they are wrong.)

OP posts:
Smozzles · 27/11/2018 19:18

Thanks for responding ... it's confusing and a bit shocking too.

Someone upthread wrote this and this rings true:
How do you handle it when your partner APPEARS to understand your needs, agrees that they will undertake to fulfil your needs...but, actually, despite time and opportunity, doesn't do it?

I did one of those questionnaires and H scored just below the threshold...it was me doing it though. His ability to make small talk & his naturally sociable nature compensate for a lot. I have seen him turn it on & off but he genuinely has no social anxiety. What he does have is a complete inability to know what's appropriate to talk about, when and to whom. He speaks to the mortgage broker like we're best mates and he was pulled up on calling his boss by his surname in work once ...

Even if he doesn't mean it, I'm not sure if I can handle a life feeling unheard and like a broken record ... I just feel so guilty as I do care deeply about him. Sad

Smozzles · 27/11/2018 19:27

I did the online test again & he's borderline. 86% of people with his score can be correctly classified as having Asperger’s Syndrome...

I'm kind of in shock.

MrsSpocksSister · 27/11/2018 19:49

It has taken me several weeks to adjust, get over the shock and start thinking about the upsides and making adjustments. Take your time 💐 of course online tests aren't conclusive. Would he agree to do some reading?

SAL83 · 27/11/2018 20:04

I can really relate to your post imsadness (my username stands for sad and lonely!)
The night before I was due to have surgery I mentioned to my husband that I was feeling a bit overwhelmed with work, the kids and my impending surgery to remove a cyst the size of my fist from my neck and he responded with "don't expect me to be waiting around for you to get over this" whereas the slightest cold means he needs full nursing. I usually just get on with things but have just felt down today after it was our daughter's birthday yesterday and we had a family party but when he arrived he refused to speak to me as he thought that I had parked the car too close to the kerb so he went outside taking pictures of the car, the kerb, the steering wheel angle and then he left the party. He has still not spoken to me since. I searched online for somewhere to go where others know what this ridiculous life can be like and I'm really glad to have found this forum. Hello to everyone x

Moffa · 27/11/2018 21:02

Hello to all the new arrivals!

I’ve been a bit quiet lately as been so busy but I have an update.

On my birthday last week we had a massive row, went to bed not speaking (standard) and the next morning he said he didn’t see the point in us being married anymore.

I was so tired I didn’t fight it & he walked out. Half an hour later he called telling me he loved me etc (standard).

Over the last 3 years I’ve kept detailed notes of things he has done/said to me. I sat and wrote him a very long letter, referencing specific incidents and conversations etc and telling him that if things don’t change then I’m done. Anyway he read the letter many times & has said he is going to change, he couldn’t argue with anything I’d written and he loves me & DC’s etc.

SO I feel a million times better because firstly maybe change will come (I have to give him a chance) but also if it doesn’t and I leave in the next 6-12 months then it won’t be such a surprise to him.

One thing I thought was very Aspie was that he said he is going to keep the letter and refer back to it! He has probably committed every word to memory!
To all those who said their OH kisses them like they are an aunt - I TOTALLY UNDERSTAND!

Flowers to you all Flowers xxx

Smozzles · 27/11/2018 21:15

Thanks ...

DH refuses to entertain the fact he could have Aspergers and accused me of gaslighting when I suggested it, so right now he definitely won't agree to doing any reading.

Smozzles · 27/11/2018 21:16

I was so tired I didn’t fight it & he walked out. Half an hour later he called telling me he loved me etc (standard).

That's my relationship in a nutshell!

Smozzles · 27/11/2018 21:18

SAL83, that's very hard ... complete lack of compassion for you. Confused

I don't know if I can stick this one out. My DH has a temper. I too wrote him a long letter but it didn't go in...just ignored it. Whenever I bring up anything about the relationship, he just changes the subject.

Moffa · 27/11/2018 21:39

Well Smozzles, it’s just happened so things may not change but he has been more helpful so I live in hope! However I was ready to leave so it’s a last chance saloon for him!

MrsSpocksSister · 27/11/2018 21:42

It took my DH about three months to agree to do any reading. The very first thing he read struck a chord with him & he's agreed to do more. And a week on from that, he keeps telling me about another example he's remembered of obsessive behaviour (his processing speed really is slow and neither of us had realised before).

MrsSpocksSister · 27/11/2018 21:43

Welcome SAL and I'm sorry to hear what you're going through 💐

Floppywillow · 28/11/2018 06:17

It might sound mean but it's good to read how many other women are going through the same.

Floppywillow · 28/11/2018 06:21

It just helps to know you are not alone

Bluebellforest1 · 28/11/2018 16:41

Floppywillow yes it does help knowing you’re not alone. I was absolutely floundering 4 years ago, not knowing what on earth was happening. I had worked as a mental health nurse with children with AS, but not adults, and they are different. I discovered www.different-together.co.uk and the support i found there, and here, has been life changing.

middleage3 · 28/11/2018 19:04

Hi everyone
I totally identify with being sick and tired of it all.
My DS who also has asd has been anxious about going to school and DH is of the opinion that the school has caused it all (and me) by referring for add diagnosis.
DH wants no intervention or help for DS at all . DH is nearly completely insightless about his ASD. We can’t even talk about it . We can only have mindless conversation about the cats or the weather - and that’s on a good day ........
DH can put on a social veneer sometimes - but you can see the stress all over his face and folk looking at him as if he is odd

I wish my DH would say we are done . It would be a relief I think.

I work in mental health and I think for a long time I was in subconscious denial about DH but when DS was diagnosed i realised that DH was completely obviously on the spectrum and it explained all the difficulties and my unhappiness.

I can be patient and reflective at work but I’ve had enough at home . It’s exhausting. I know I have been expressing frustration and annoyance and that’s the wrong tactic - but honestly I wanna leave work and come home to relax and unwind

mydogisanidiot · 28/11/2018 21:25

Hello, another one here married to an undiagnosed man. I've read lots of your stories and can relate so much to what you say: the feeling of loneliness, feeling unloved and unimportant. Like many other PP's, I'm also someone who's been dutiful and conscientious all my life.

We've been married for over 20 years, and I am afraid to say things have not improved in all those years. I first knew something was not right after our second DC was born (2 weeks after the due date) and he went back to work the day after because he had important things happening at work, which meant I was stuck at home with a toddler and a new born baby far from any family support. My lovely mum came to stay for a few days to help out, but she had to take time off her job to do so. He couldn't see the problem. It's little wonder I suffered with PND.

Second time was when I was involved in an accident while I was with the DCs. I'd hurt my foot and couldn't drive so we were stuck. I phoned DH at work for help. He was in an important meeting so couldn't possibly help out. I had to ring my neighbour for help - she came and and got us straight away. She's a nurse and took me straight to A&E where I was stitched up and treated for shock, and then looked after our DCs while I was being treated. I have so many similar other examples, which seem shocking in hindsight.

God knows why I stayed with him after those incidents. I think it's because DCs were little, money was tight, I had nowhere to go and I wanted to do the right thing by not breaking up our family.

Now our DCs are almost grown up and we have the house to ourselves most of the time. I am not going to lie, it's been hideous. He hardly bothers to engage at all. All he does in the evenings is drink too much and watch crap tv. He has hardly any friends of his own, never bothers to make the effort to meet them, and doesn't want to do anything or go anywhere. In the past I'd absolutely put my foot down and drag him out but now I can no longer be bothered. I've always kept up my own friendships, activities and interests and would much rather do them without having his negative fun-sucking presence to worry about.

He's now got a bad back and has taken to going to his bed earlier and earlier (separate bedrooms) leaving me to do all the heavy work around the house. He can't do anything on account of his back, but he can still walk to the shops for beer. If I sound harsh it's because he has a history of health anxiety and takes to his bed for days even when it's just a cold, so forgive my cynicism for not taking this bad back seriously. If I suggest that I maybe he needs to help and that I have always had to cope when I've been ill or injured he will go absolutely batshit at me for being so callous. I suggested we should get a cleaner in that case. Out of the question (he is also very tight with money)

Does anyone else have the hypochondria and stinginess to deal with? He doesn't realise he is as bad as that, I feel sorry for him in a way , I don't suppose he can help it and I know it must be hard for him with his constant anxiety.

If it weren't for the DCs still at university I would go now.

I am so sad about this all. The man I married was so energetic and loving, or so I thought. I miss affection, human touch, little acts of kindness. One good thing, I've learned to be tough and self reliant. I miss feeling loved so much, but I can't even bear to think about that or I'll never stop crying.

mydogisanidiot · 28/11/2018 21:29

SAL83 I just read what you said about the way your DH responded to your surgery. I am sorry, it is such a lonely feeling when you can't depend on your DH to support you.
Thanks

Moffa · 28/11/2018 22:45

@mydigisanidiot I relate to everything you said. My DC’s are 4 and 2. I don’t think I want to be here when they are grown & gone.

To be honest that frightens me more than being alone with 2 children now.

And yes to the stinginess. Drives me mental! Tells me constantly we have no money (we are fine) but then will drop thousands on something for his hobby.

Moffa · 28/11/2018 22:45
  • my dog not my dig!
SAL83 · 29/11/2018 06:51

mydogisanidiot - I can relate to the ailing over minor illnesses. Even when we've both caught the same cold he will tell me that it has developed into a worse strain when he has it! I have the opposite problem with money though. If I tell him we need to be careful as we don't have much money left until pay day, he will go in mood with me and buy things anyway saying "we earn good money" and never accepting that we have a lot of outgoings and that money does not grow on trees. Luckily I do manage the finances otherwise we'd be in big trouble as he would never consider if we had enough money before buying something and I can never have an adult discussion about planning and finances.
It's so interesting how differently everyone presents. My DH is not formally diagnosed but AS is very prevalent in his family. He cannot managed any change or anything outside of his plans. If I ever make a mistake I'm called an "f'ing liability" and tells me I should process things like him in sequence then I would be better - then when he makes a mistake, it is never his mistake, he doesn't make mistakes - it is my fault, or the kids fault, or the man in the moons fault. He would then be upset about the most trivial thing for days or even weeks at a time. He hasn't spoken to me since Monday when he thought I had parked the car too close to he curb! I don't want to be wholly negative as we do have fun times and laughter together but he can flip on a knife edge wih the smallest thing upsetting him for days so I just feel like I always have my guard up and that he needs clinical conditions in place to let him relax and turn down the autism. Last Christmas day he refused to talk to me all day as he had asked for a cuddle in bed but I was chopping the veg while helping our some build his lego so couldn't attend to his needs immediately. All the low level daily adjustments we make just seem to add up. It would be nice to just feel relaxed at home without having to have the lines in the rug a particular way Confused

mydogisanidiot · 29/11/2018 08:08

Moffa it's very hard when the DCs are small. You are constantly running round after them, working, running a home and dealing with all the wifework and emotional labour. I am many years down the line from where you are now and I wish I'd had the courage back then to make the break. About 12 years ago I asked for a divorce but his reaction was horrendous. He broke down in tears, became badly depressed and told me how his family meant everything to him. I was really worried about him and his state of mind and couldn't bring myself to go through with the break up. We went to counselling, and for a while things seemed to improve. Unfortunately it didn't last and we are back where we were now.

The sad thing is that I truly believe him when he says we mean everything to him. His way of showing his devotion is through working hard at his career, doing the garden and DIY jobs. He loves the stability and security of having a nice home, wife and two children. He's never strayed or been unfaithful, he's good at managing finances and is generally a gentle soul. Unfortunately the mismatch in our emotional and tactile needs will never be resolved. When the DCs were little I'd cuddle and bathe them, curl up together for bedtime stories etc, and get comfort and affection that way. Now they're adults obviously that doesn't happen any more!

Do you have a plan for the future? I hate to be a downer but the years will whizz by: one day you are 50, the DCs are adults and it's just the two of you again, and everything becomes magnified. In my experience things won't change unless you make some tough decisions. I wish you courage.

I feel for you all, I really do. I wish I'd had this thread for support and advice twenty years ago!

MrsSpocksSister · 29/11/2018 11:20

I'm at the stage you describe, when my DD has left home, mother has died and I feel as though I've been made redundant twice over (though I do still work part time). I realised I was facing a bleak future unless we could make a better connection that would allow me to feel loved. It's not an unusual time for people to face a crisis.

I'm attaching the Lorna Wing referral criteria for those who are interested.

We had another helpful Relate session last night. He remembered several salient things about his childhood. It's progress.

Married to someone with Asperger's? Support group here!
LittleMy77 · 29/11/2018 18:22

Been a while since I posted, but it just feels like more of the same. We've been in couples counseling for a while (since before I started putting 2 and 2 together on what could be the crux of the issues) and the last few sessions its been very apparent there's this massive gulf between expectation and reality on emotional connections and support.

DH is v keen to work on it and change, which is great but I can't help feel its hopeless as innately he doesn't 'get it'. And is it fair to force someone to be something they're not? The latter is something that is hotly discussed in autism circles in relation to kids and i can't help thinking also relates to adults

Running underneath all this however is a better understanding of what's driving some of our "you don't listen / don't get it / you're a brick wall" arguments.

DS (who's still v young) has been assessed and has possible HFA flags - however this has opened up us finding out a ton more info on language and processing speed delays which DH and I both think is relevant in DHs case and is causing some of our massive arguments.

I think if we look in both our families, there's definite traits going back multiple generations. My lightbulb moment was that 60 years it was perfectly acceptable to a be a taciturn non emotional support type person, now, not so much

midcenturylegs · 29/11/2018 18:56

@MrsSpocksSister that does sound like good progress. Hang in there and give it your best shot, that's all anyone can ask of you x

Moffa · 29/11/2018 21:54

Hi everyone! Hope you’re all getting on ok.

@mydogisanidiot thank you for your kind words. I know I have some proper thinking & tough decisions to make. DH wants us to both work on things but I obviously need a deadline in my mind. We just had a big discussion tonight & I feel progress, even if it’s just him accepting what he is like.

One positive thing is that he has given up drinking. He said he remembered how his mother used to drink every night & how it made her. Perhaps he recognised some of the behaviour I had pointed out to him.

What shall I do? Set a six month deadline for serious behaviour changes?