Hedgehog thread 2

[Edenviolet]

I have received so much support in my previous thread and I am really grateful.

I'm continuing to try and sort things out and have started another thread so I can update.

I'm sure you will get to the bottom of it Hedgehog, with children it's quite often a matter of trial an error and we all know you've been trying very hard for a very long time.

I said way back in another post that you are doing the job of 3 people - a parent, a therapist and a nurse - and why you are getting those DLA payments, so you can pay other people to do these things! (and not to spend on an expensive car and to pay off debts)

It is helpful that there are people on here with information about diabetes and other medical issues, I hope you can find some answers together.

With the diabetes its always one step forwards, two back. I'm sure we will get there but when it doesn't respond how you expect it is frustrating.

Had caf meeting today,not much can be done, the early intervention team can't offer support, the scheme for 3 hrs help a week is apparently not suitable for us, children with disabilities team will not take on our case as although dcs have severe health issues they do not attend special schools or have learning difficulties.
Pre school have agreed to a later start time for dd which will make things easier in mornings and the manager will speak to school and let them know how much support dd needs when with them so that they are prepared.

All support available is in place for dd1 and ds1 so we are at the point where nothing else can really be done apparently.

The diabetes team are seeing dd2 again in feb and dd1 has a gosh appt also in feb.
I will try to do some further sorting out of finances this week too, tomorrow I have counselling and ds2 has physio so probably won't be till wed. I'm feeling under so much pressure and so stressed out.

Don't panic Hedgehog you are doing brilliantly - both you and DH.

As soon as you have reduced outgoings you will be able to get more babysitting and respite. Have you gone any further with your 'day off' idea?

Not yet as have been so busy, will try to put some plans in place. I need a rest so much I'm absolutely exhausted.

On a positive note I've been getting a lot done in the house and feel more organised and a bit calmer as a result especially getting dcs ready in mornings-it helps now that I can find their clothes/bags/medicines!

Hi hedge, have just read all your previous thread and this one. You know I like you, I have PMed you before and have posted on your threads before.

You need to do something. This cannot go on. It CAN@T GO ON.

It is utter madness! How long until you are alone with the kids and have a migraine and black out? If it happens in the morning no one would find you until 6 when he came in from work.

What happened when you snapped with him was awful, it is good you know that. You need to ensure this never happens again - ever. What steps have you taken to ensure this?

You mentioned respite - have you followed this up since they said they would refer to the other team? Do you know how much it would cost them to have 4 disabled children in full time foster care? They do not want that - outline this to them. In order to be able to continue to care for your own children you need support.

This sort of thing has been coming for a long time with you, frequesnt threads each more and more desperate, it has been clear for ages that you have been close to snapping. And you did. The important thing now is that things change so this never happens again. because if it does then it would be a very different situation.

You keep saying "Ican't try this because of X or I can't do X because I feel anxious about it" thr trouble is it is not working the way it is so something has to change, it just HAS to. Does the youngest ever really get out the house? Something has to change in this situation to give you all more normality.