Good evening, tis me, Mouse
Well, where do I start? Nemo was doing fine in surgery, originally second on the list, moved to first once they saw his previous difficulties in his notes from his first op. He was in for about 3 hours and by that time I knew he was struggling.
I was called round to recovery where they showed me the extent of the 'damage' to his face and mouth etc..... he was bleeding out and they wanted it to stop of it's own accord, yep, cool with me, rather than another anaesthetic and more surgery, so off we went to PICU where he was kept 'dozy' so that he rested and got as we as he could.
His reflux is still bed so last night he almost puked his feeding tube out which is a HUGE ARRRRRRRRRRRRRRRRRRRGH as passing another would damage the surgery, so the longer we can keep this one in, the better.
The next day (yesterday) they were looking for a bed in HDU/or on the ward but nothing came free so he stayed in PICU. Not ideal as it meant me or DH hanging off the side of a tiny bed to be with him all night, and basically, it would have been me! Anyway, he timed a puke fuelled by rage perfectly and they sedated him which meant DH and I got to lie flat together in separate beds but the same room until 6am, so we've had some sleep.
They managed to close all of the cleft which was unexpected and a huge YIPPFUCKINGEEEEEEEEEEEEEEEE, so with a bit of luck it will stay like that and he'll be on roast turkey by Christmas Day 
There were a few touch and go moments and as always I managed to be good and bad cop where his meds etc were concerned. He lost a lot of blood and for a while it wasn't looking great as he'd been bleeding for 6+ hours. They were worried and so was I 
The great thing about PICU is they let YOU do a lot of the care so I did. I kept an eye on the clotting etc, cleaned the pooling blood away..... turned him when he struggled to breathe, got the suction ready..... I've been there before, too many times.
So, tonight, he's in with me, MIL is still here, DD is okay, DH in the guest cabin and all is well as I have a HUGE bag of maltesers! Fuck only knows how I didn't drink. It would have been possible...... oh yes.
I think that says an awful lot to me..... faced with my baby in PICU for the forth time in 3 years..... and I touched not a drop and still haven'!
Come on Babes, you CAN do this, if you want to. YOU CAN. xxxx
PS - hello and thank you to all of the new babes xx
I need to go does him up but will be back soon. So much thanks and love to you all, especially you Ma for shitting yourself about the new thread when you have enough on your plate.
Love you all lots, one very tired and emotional but home, Mouse xx