"Sometimes I feel cheated, and that makes me feel awful. I married a 6ft 2 workaholic who went out a lot had bags if confidence. We were going to do so much. Now I have someone totally different."
And he used to be a big, strong workaholic, who went out a lot and had bags of confidence.
He used to be someone totally different.
And now a horrible illness has taken that away from him. He must feel cheated of the life he planned as well as terrified of losing the bits he's managed to hold onto (you, the children, his work).
From reading the thread I agree that you need to make an executive decision about morning childcare for the baby. Your DH clearly isn't able for it.
It seems that you guys maintain something of a fiction that he is home to do SAHP duties and some freelance work, but the reality seems to be that he us too sick for looking after a baby, or much work.
It must be very hard for him to be at home and not be capable of looking after his own child, but that seems to be the reality at the moment. You might need to make that call for him.
I'm so sorry you guys are going through this :( The strain on you all must be enormous.
Just one other thing:
"They know money is an issue and that we can't do x y and z because " daddy is ill" "
That is not something for them to know.
9 and 10 year old children should not be concerned with household finances, and certainly not with the reasons money is short. Particularly if that reason seems to lay the blame at Daddy's door.