Biliary atresia... any experience?

[HKing]

my little girl was born at 24 weeks exactly.
She is on her 12th week in NICU - diagnosed with PDA, CLD, grade 4 brain bleed... previous NEC, UTIs the lot.
She's now been diagnosed with Biliary atresia. Anyone with experience on this? Any stories? Thank you!

Hey @HKing , I hope your little girl is doing ok. I haven’t got any experience but there’s a Facebook group called “mums of preemies support U.K.” which has loads of members and you might get an answer there. All the best.

@HKing I just came across the post from a while back and just wanted to check in to see how your DD was doing?

I have BA - Kasai only and am pregnant with my second child now. I have to have regular monitoring both in pregnancy and not but lead in general a very normal life. If you want to ask any questions, please feel free to DM me x