Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

Really good to hear the fantastic update. It sounds like Gen is really fighting hard.
And thanks for the but I guessed Badnails just needed a bit of cheering up, which thankfully it did :)

Keep focusing on those numbers if it helps the time pass.
I'm sure I will see you one day very soon for that

Northernmonkey you are an utter star.

This is when I know that MN is a totally amazing place.

Northernmonkey you star.

I hope your little girl is still doing well BadNails, thinking of you all.

Well done Gen, well done you for staying strong and well done northernmonkey

Fantastic news re your little one Badnails
How lovely Northernmonkey and you others who live near.
Thinking of you all tonight BadNails and sending positive vibes.

Badnails only just seen this. So sorry to hear Gen took a turn but am so so pleased to see she is fighting back again. How are you doing lovely? You must be exhausted. Hugs to you and dh. What a rollercoaster you've been on.

Northernmonkey that is an amazingly lovely thing you did. I do love mn.

Keep fighting baby Gen xx

So pleased with the positive updates,

Stay strong -you are all in my thoughts and prayers still.

Just started reading your thread Badnails and wanted you to know I am thinking of you.

Sending warm wishes and positive vibes to you and baby Gen.

She sounds a real little fighter.

how was your night? x

Hope all is still going in the right direction with Pinky, Badnails. Thinking of you both.

Thinking of you and your little girl, you are in my prayers.
I am a mum to a little premie girl and she fought like hell to be here today, I hope you are all ok.

Hope you are all ok too. You are still in our thoughts.

Hope all is well, shower here and ready whenever you want! :-)

thinking of you both x

How it going Badnails? Is Genevieve doing what I told her?

how are you both doing today? x

Hello, thanks for the continued support! It is good for the soul to read your messages :) I'm really not much of a hippy/spiritual type in rl, but the good vibes are helping.

Big day yesterday - Gen is off the vent and on optiflow and has spent most of the last 12 hours in air! She's off the morphine and the other sedative drug and her last known crp was 33? Possibly 36 I'm clearly exhausted!

We just had our first cuddle in a week. Can't tell you how good it felt. Bit like this..

Fingers crossed we're over the worst now.

Great news x

GO GENEVIEVE!

marvellous news! all my love x

Thanks so much for taking the time to update us, this is fantastic news, she sounds a very strong little girl. Hope she is home soon she will be a very stubborn toddler

God help you when she's 15. The fights will be epic she is made of stern stuff.

Somehow missed this. What a rotten time you've had Badnails, but I bet the cuddles are making up for it now!

Mumsnet at it's best.