Anyone with experience of Trevor Mann Baby Unit in Brighton? PinkyNail is here, it could go either way and I'm scared

[BadNails]

Are they good here? Do the nurses advocate for you? Or am I going to have to fight for her every step of the way? I'm slowly running out of fight.

They think she has NEC. She was doing so well, I can't believe it.

I'm on my phone, just waiting with DP. I need some hope. She was baptised today so I know I'm not in a good place.

Good morning Badnails, hope Gen is doing well this morning

much love today x

Thinking of you all Badnails x

Just checking in to see how things were going and I'm really pleased that you now know what the problem is, and that Gen is such a strong little fighter. Shall be lighting a candle and sending out positive thoughts for you. x

First of all I have to publicly acknowledge this act of kindness. I went into the nursery yesterday evening having waited a couple of hours for a long line to be put into Gen. The lady at reception collared us and presented us with a gift bag.

"The lady who left it said you won't know her by this name."

??

'From one mumsnetter to another', the tag said.

Thank you northernmonkey. I know you have my pm and there is a tea or coffee (or one day) with your name on it.

lucjam thank you so much for the offer of the shower. I may just take you up on that! We're waiting to find out if we have a double room in the Ronald McDonald house and will know more tomorrow.

Gen's CRP is down into the 70s now - yay! And she has bowel sounds - double yay! Strange thing to be excited about I know, but slowly I feel we're clawing our way back. The consultant this morning seems happier with her progress and I sense a distinct lack of bs around here - they're very transparent. There's even talk of weaning her off the vent and the morphine, but it's the long game for sure.

The night reg said Gen had turned a corner. I'm trying to not get too excited (made that mistake before :( ) but I'm not quite in the pit that I have been.

MABS I have no idea how you've done this twice. What an incredibly strong person you must be. I can see why you choose to raise funds for the unit, they've been brilliant to us.

Hope everyone is having a good weekend.

Oh that's great news hope she continues to improve quickly

Brilliant to read.

I agree absolutely utterly brilliant to read - and the gift from Northernmonkey - what an amazingly lovely thing to do. Restores your faith in people when you hear of such kindness.

Sounds like good progress. And what a lovely thing for northernmonkey to do!

Delighted to hear such positive news with everything going in the right direction - long may it continue until you take little Gen home. Thinking of you x

Fantastic news and to Northernmonkey

Aww. I just had a little weep, NorthernMonkey you are lovely! Badnails, I am so pleased that corner has been turned! It's amazing how engrossed you get in other peoples lives on here, I'm sure I'm not the only one who logs on regularly to check on Gens progress! Tell her from us to keep up the good work! X

Brilliant news.

Thats lovely Nothernmonkey.

Go Gen

Fantastic news! Go baby Gen!

And how very lovely of northernmonkey.

marvellous news! so pleased! and I know northernmonkey in RL, she is indeed very lovely, how kind of her

fergoose that was my thinking too. I am incredibly cynical about folk!

Saggy I have passed on your message to Gen . Incidentally I'm trying to work out what that book is that you're looking for... no luck so far.

Also, Gen's crp is now 56 :) The numbers make me happy, I know I shouldn't focus on them.

you should definitely focus on the numbers - is all a step further in the right direction :) Whatever gets you through the day and makes you happy is a good thing so focus on what the heck you like I reckon :)

the numbers are good :) come on Gen!!

Wonderful news! So happy for you.

ThNks for the update! This thread makes me think I need to raise my game and raise money for my loa l NICU unit. Ds1 was I. There for a couple of days and although it was. It that serious the service and the need that this unit has is something I would never take for granted.
Let's hope it is o wards and upwards!

Stupid IPhone I meant it wasn't that serious.!

If anyone fancies seeing the baby unit little Gen is at, click on theis link and then watch the video I had made for my last fundraing event for TMBU

www.justgiving.com/David-Guiel1

You may want to have a tissue ready though! It is an amazing place truly :)

Brilliant news. Well done Gen. Well done badnails .

And northernmonkey

MN is great.

Wonderful news, come on Gen!! So glad she has turned a corner and is still improving BadNails :)

That was a lovely thing to do northernmonkey, makes me feel all warm inside :)