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Late term abortion - 31 weeks

257 replies

Hellokitty1986 · 07/06/2025 14:29

Trigger warning....(abortion)

Termination at 31 weeks due to extenuating circumstances (uk)?

I will start by saying my son has a genetic disorder which is spontaneous (it was not passed on through me or dad) just one of those unfortunate things. He is 8 years old and In turn, this genetic disorder has caused a cancer that has lost him the use of his legs the past few months. Previous to this he was on a drug trial which was going well and all this decline in his health has happened during the pregnancy which has been hard in itself. Regardless, he is excited to meet his brother as he has been very isolated especially recently.

I had an amnio to rule out my sons condition in this new baby (that would be unlikely considering both me and my partner) and the other few they test for in the UK (downs, trisomy, edwards and pataus). All came back negative.

Everything looked great until 28 week scan. Prominent fetal gall bladder. Asked for a termination. Said no come back in 2 weeks as may resolve. Came back for 30 week scan and it's worse...Prominent gall bladder, dilated bowel and ascites around abdomen (fluid). I am going to speak to a consultant on Tuesday but regardless of what they say this sounds awful. I am also stunned that the only test for 3 genetic disorders with the NHS amnio. I was absolutely sure that they said they test for more. I remember I did ask could I get more extensive testing privately and the dr at Manchester said no, he's never heard of that. I've since realised that's not true. I feel like such an idiot. I am seeing a consultant at another hospital next week but this screams chromosomal disorder already.

Would I be able to make a case for a termination at 31 weeks (UK) due to my sons declining condition and the fact that I cannot look after 2 sick children? I cannot cope watching another child have a bad and painful life brought into the world by me.

Will he be in pain in my stomach if he dues have these anomalies? I can't eat or sleep. I feel sick as a dog.

Late term abortion - 31 weeks
OP posts:
badhairmum · 11/06/2025 15:48

Delighted at this update. Wishing you all the best

SaveMeFromMyBoobs · 11/06/2025 15:49

Hellokitty1986 · 11/06/2025 14:56

So I thought I would update..although I don't really understand how this has happened. And I feel pretty nuts now.

But the in depth scan showed everything looking within normal parameters? And no fluid around stomach. I did ask for more in depth genetic testing of my amnio sample but I don't think they will agree to this (on account of nothing weird)

I am still stunned but at least I can relax for now?? I don't trust it 100% but..what can I do?

Thankyou so much for everyone that left kind messages and we're thinking of me yesterday. I don't have any family so that's kind to think of ppl caring about this outcome x

It's really really common. As I said I've known so many friends be referred to fetal med for soft markers like this, short femur etc. Never been anything wrong on the in depth scan. Short femur has been in ratio with the rest of the baby (both parents short so of course the femur was short the baby was short and still is). Normal scans are really inaccurate, my baby was predicted in a growth scan to be 7lb. I gave birth less than 48 hours later to a baby that was almost 9.5lb. How baby is lying, moving, who is taking measurements etc, all so so so subjective.

Lovemysleeeeeep · 11/06/2025 15:57

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SaveMeFromMyBoobs · 11/06/2025 16:07

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Don't put pets down for disabilities? I wish I lived in the naivety of your world. You are aware healthy pets get put down literally because they can't find a home for them? Disabled and unwell animals certainly are euthanized to save them from pain and suffering.

You may disagree with it, but if a baby is found to have a condition incompatible with life they absolutely can be terminated at any point. There are some disabilities that mean babies would live extremely short and painful lives, and parents choose TFMR out of absolute love with complete heartbreak to save them from that pain and suffering.

Hellokitty1986 · 11/06/2025 16:12

SaveMeFromMyBoobs · 11/06/2025 16:07

Don't put pets down for disabilities? I wish I lived in the naivety of your world. You are aware healthy pets get put down literally because they can't find a home for them? Disabled and unwell animals certainly are euthanized to save them from pain and suffering.

You may disagree with it, but if a baby is found to have a condition incompatible with life they absolutely can be terminated at any point. There are some disabilities that mean babies would live extremely short and painful lives, and parents choose TFMR out of absolute love with complete heartbreak to save them from that pain and suffering.

I've literally just held my son whilst he cried himself to sleep (he is almost bedbound at 8) because he feels so unwell and has lost everything he ever knew that gave him happiness. I am devastated I can't fix this in any way.

You would understand if you had seen your own child suffer like this every day. It's pure torture.

OP posts:
buillonrouge · 11/06/2025 16:16

@Hellokitty1986 Absolutely fantastic news am so relieved for you . Am feeling quite teary . What a terrible time you have had and now you have so much to look forward to 💐Xx

TheNightSurgeon · 11/06/2025 16:25

Hellokitty1986 · 11/06/2025 16:12

I've literally just held my son whilst he cried himself to sleep (he is almost bedbound at 8) because he feels so unwell and has lost everything he ever knew that gave him happiness. I am devastated I can't fix this in any way.

You would understand if you had seen your own child suffer like this every day. It's pure torture.

I'm so happy you got positive news op.

I had a little girl 18 years ago who was born with a painful and life limiting medical condition. She didn't survive long but her short life was filled with pain and tests.

I can categorically say that if I had known beforehand I would 100% have had a TFMR, if one of my other pregnancies had the baby presenting with her condition I would have had a TFMR.

Not for my benefit, but for the benefit of my child.

Those saying "I could never haven't got a clue, they really haven't.

ChickalettasGiblets · 11/06/2025 18:15

Wonderful news OP. Wishing you all the best for the rest of your pregnancy

purpleygrey · 11/06/2025 19:41

Wonderful news. I’ve never been so happy for a stranger before in my life ♥️

HiddenInCubeOfCheese · 11/06/2025 19:45

So happy for you, OP!

nunsflipflop · 11/06/2025 19:48

Great news. I know you will still worry until he is safely in your arms, Sending love

AuntyAgony · 11/06/2025 21:10

Ahh I'm so happy for you OP! Like genuinely relieved. I have been thinking about you and hoping for a good outcome. Obviously you'll still worry but I hope the rest of this pregnancy journey is pleasantly uneventful and everything goes OK. 😊 I'm just in awe at what a strong woman you are. Wishing you all the best.

Hellokitty1986 · 11/06/2025 21:34

caringcarer · 11/06/2025 15:01

I just couldn't abort at that late stage of pregnancy. But it would be you having to do care so you have to decide if you'd prefer to do the care for DC or abort. Only you know if you could get over such a late abortion and how much support you have around you to help you cope with care. A dreadful choic to have to make.

It's not about me having to do the care..its the quality of life. My little boy is in constant pain and has no life now. It was about saving another human from that existence. You would understand if you'd lived it.

OP posts:
BunnyEaster · 11/06/2025 22:03

That's such good news OP

Scentedjasmin · 11/06/2025 22:55

Fantastic news OP!
If you are still concerned re other conditions, could you go private? I had private dna tests that screened out some genetic conditions without the need for a needle. It was just a blood test. Cost around £300 albeit a few years ago as I recall.

Anotherforgottenpassword · 11/06/2025 22:55

OP, I am so pleased you have had such positive news 💐

LameBorzoi · 12/06/2025 01:17

I'm so pleased that you've had good news. From what I'm aware, I agree with a PP that the things that were reported can be seen in perfectly healthy babies.

Yazzi · 12/06/2025 09:42

OP my friend was referred to FMU following a scan that showed holes in baby's heart at around 24 weeks. We lived rurally, she had to fly to see the specialist and it was two weeks of torture later.
Similar to you, the next (in depth, specialist) scan showed literally no problems. The specialist explained that measurements on regular scans are deeply inexact and sonographers are rightfully very cautious in identifying what could be problems so they don't miss anything.
It took her a long time to relax after this, and I imagine that would be the same for you in spades. I am just sharing to say your experience isn't unheard of, and hopefully you can come to trust the result. Best wishes to you and your little boy.

Soontobesingles · 12/06/2025 12:39

Hellokitty1986 · 11/06/2025 14:56

So I thought I would update..although I don't really understand how this has happened. And I feel pretty nuts now.

But the in depth scan showed everything looking within normal parameters? And no fluid around stomach. I did ask for more in depth genetic testing of my amnio sample but I don't think they will agree to this (on account of nothing weird)

I am still stunned but at least I can relax for now?? I don't trust it 100% but..what can I do?

Thankyou so much for everyone that left kind messages and we're thinking of me yesterday. I don't have any family so that's kind to think of ppl caring about this outcome x

This is lovely news. I think that normal scans are very inaccurate and this one more likely to be correct.

Adhdalien · 12/06/2025 13:27

Fantastic news OP!

Tangerinenets · 12/06/2025 20:29

Good luck with everything. Keep us updated on it all x

DoyalikeDags · 12/06/2025 21:56

Glad to see a positive update. Hang in there xx

AnnoyedAsAllHeck · 14/06/2025 08:18

@Hellokitty1986 You got some positive news but I can totally understand why you are still nervous and worried.

I cannot allay your fears, so all I can do is send you {{HUGS}} and a handhold.

Please take care of yourself.

Tiredandtiredagain · 14/06/2025 11:51

Amazing news

Lavenderfarmcottage · 14/06/2025 15:23

Hellokitty1986 · 11/06/2025 14:56

So I thought I would update..although I don't really understand how this has happened. And I feel pretty nuts now.

But the in depth scan showed everything looking within normal parameters? And no fluid around stomach. I did ask for more in depth genetic testing of my amnio sample but I don't think they will agree to this (on account of nothing weird)

I am still stunned but at least I can relax for now?? I don't trust it 100% but..what can I do?

Thankyou so much for everyone that left kind messages and we're thinking of me yesterday. I don't have any family so that's kind to think of ppl caring about this outcome x

That is great news. I am going to pray for your son and unborn baby this evening. Your posts touched my heart and I feel for you. I relate to the part of no family & I really hope that things turn around for you. Sending so much support xoxo